Forum Discussion
mk24
3 months agoMember
@HannahM
mine is ILC (Invasive Lobular Carcinoma) grade 2b, hr+pr+ her2- don't have a stage yet, waiting for results from sentinel node biopsy i had done yesterday, then on 11th of Feb supposed to have right breast mastectomy with skin sparing diep flap.
I will ask what the recurrance rate on other breast is and see if double mastectomy/recon is a better option. Ki67 is how fast the cells divide and the recurrance rate i believe also. the higher it is the likely they are to push for chemo, and they also look at grade for same reason.
I am also waiting on gene test.
Good idea re: "push for full info on the tissue removed at surgery to stratify your risk."
Apparently the EndoPredict test or Oncotest doesn't work as well on lobular cancer, I heard this from the research team at Queensland University research centre talk. Things still feel so uncertain.
there is a free uk predict breast cancer app that oncs use too.
Was yours IDC (invasive ductal carcinoma?)
mine is ILC (Invasive Lobular Carcinoma) grade 2b, hr+pr+ her2- don't have a stage yet, waiting for results from sentinel node biopsy i had done yesterday, then on 11th of Feb supposed to have right breast mastectomy with skin sparing diep flap.
I will ask what the recurrance rate on other breast is and see if double mastectomy/recon is a better option. Ki67 is how fast the cells divide and the recurrance rate i believe also. the higher it is the likely they are to push for chemo, and they also look at grade for same reason.
I am also waiting on gene test.
Good idea re: "push for full info on the tissue removed at surgery to stratify your risk."
Apparently the EndoPredict test or Oncotest doesn't work as well on lobular cancer, I heard this from the research team at Queensland University research centre talk. Things still feel so uncertain.
there is a free uk predict breast cancer app that oncs use too.
Was yours IDC (invasive ductal carcinoma?)