I lost it. CT scan, axillary clearance

I have asked the McGrath nurse about measuring pre surgery for a lymphedema sleeve and she said there is a machine that does it and it is on order but no idea when it will arrive.

I also asked the lady doctor yesterday and she said lymphedema is rare nowadays and if it did occur a sleeve in my normal size would be too tight at first and would cut off circulation. She seemed to think it might be a stepping down in size process.

She wanted to drain my post mastectomy swelling yesterday as with gravity it has made a big soft lump right along under the scar but she went and asked the surgeon and he said he would get it next week during surgery so I guess I will just have to put up with it until then.

I also asked about seeing an oncologist since they do have the tumour pathology results and my axillary clearance will be done next Monday and the lady doctor said they will be presenting my case in a meeting to oncology on the 15th Dec.

I also asked why the second chest and abdomen CT scan within 18 days and she told me it was 'staging' for the axillary clearance and to make sure the cancer had not yet spread to organs. For someone who vowed a month fiddling about with core biopsy and then the surgery could not have possibly put the cancer up in to my sentinel node in that time and now 3 weeks again to my next lymph node clearance surgery, it doesn't not exactly boost my confidence that it isn't spreading in to my blood stream to any where it feels like it.

At least the tears did pull a few answers out on my treatment as it seems to be a well kept secret step by step otherwise.