Hi, I know this is a bit late in the day, thought I'd let you know my story in case it helps. I found my lump 07/11, and had FNA's then core biopsy over the next two weeks. The lump grew between each USS. I decided on a double mastectomy - lump was in the left - and to keep my implants, which were there from having had previous lumpectomies and being very lopsided! Up until I got the final path post mastectomy I was told by all USS techs that it looked like fibroadaenoma. Naturally me being me nothing was ever going to be straightforward! The mastectomy 29/11 went well, but on 03/12 I felt unwell - the antibiotics did not agree with my liver. My right drain was taken out on covering doctors (not surgeons) instructions on 01/12. I had a pig tail drain placed 03/12. This blocked. I then produced two massive haematomas one each side and on 06/12 had to have my implants removed. I finally left hospital 10/12, and produced seromas, which have been aspirated once, and need further aspiration as I write. My left nipple has not survived, it's a thick, black scab and I'm waiting for it to fall off. My right nipple is mainly ok - I've just lost the tip. In all this doom and gloom my surgeons have been fabulous and I have been brilliantly looked after - my nurses were all amazing, as were the staff at the Mater Breast Care Clinic at the Private Hospital. My chest looks awful, but I've been assured that it will start to look better soon. I've gone from DD to nothing, and don't regret my decision at all. I'm a size 10, so it doesn't look too bad ass long as I choose my clothes carefully. I don't regret my decision, especially after talking to my GP, who has been an incredible support. I may or may not have reconstruction - implants will be my only option. The lack of credible research concerns me, as does the possibility of a recurrence. I have not been offered any radio as yet, but will not be seeing my surgeon until the new year. I'm currently in Indonisia halfway to the UK to see my family, for a trip planned long long ago - I refused to miss it! Most of the time. I'm feeling ok, but once in a while I'm not. I guess that's normal. I just find the lack of information frustrating.
Overall with all I have read I am certain a double mastectomy was the very best chance I could give myself, especially as I had a lot of fibrocystic changes in my right breast. I hope all goes well for you, and send my love.