How do you know?
How do you know your formal diagnosis? Is it something you remember being told and you wrote it down? Did someone qualified to do so eg your oncologist, ever give you say an email, or letter or a reco...
Forum Discussion
@Temple You are entitled to receive copies of all correspondence between your doctors (their formal records) to help inform you. This is enshrined in law, and is referred to in the introductory document signed at each practice and which advises you have the right to review your health record (NB: some doctors, depending on speciality, may withhold document(s) if considered to pose a risk to the patient). I have copies of ALL correspondence between my doctors.
You are entitled to receive all test results. Request these from the referring doctor. If the referrer doesn't think to add your GP to the list of results recipients, there's usually an area on the form where you can write your GP's name and/or tell a staff member at the test location.
For radiation, you are entitled to receive copies of your prescription/treatment schedule, and radiation fields (in colour) from your RO. You are entitled to receive copies of the MDT meeting reports for every meeting at which your case was discussed, and you have the right to know what was discussed about your case, who attended (their names and job titles) and what the broader team's thoughts are about your case.
The health system prefers quiet, passive, docile patients who don't know their rights and 'know their place'. It was only by reading through this forum that I realised I have every right to open my mouth...the squeaky wheel gets the oil.