The only info I have had from any breast care nurse is the equivalent of what’s written on the side of the packet re side effects. I can’t imagine doing a nursing degree to discuss perfume free skin lotion all day. Nothing useful and so far don’t even know my diagnosis or path results - the answer to everything is to ask someone else 😜 So my bad I didn’t write anything down back in September thinking I would be given a record of my diagnosis. I’ll live with that mistake and hope they know what they are doing and put shared care and patient centred down as major BS designed for quality accreditation. There’s plenty worse that can happen in this world.
I did go to see my GP last week and she didn’t know - she has some correspondence but few
test results like bone density or my
blood work. said I should ask the oncologist.
As ever I appreciate the replies and good wishes. It feels like absolutely nobody else gives a damn about what’s on my mind but the folks on this network. 🙏