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Hazel_M's avatar
Hazel_M
Member
12 years ago

Hospital Again!

Hello pink sisters, got out of hospital today after a 2 night stay. This time I was only mildly dehydrated and mildly malnourished. I wasn't handling things very well, but most of you would know that. I developed a psychological problem with my eating. Hard to explain but when I put anything in, all these visions would pop into my head about what I was eating. I knew what I put in but because of having no taste I conjeured up images of terrible things in my mouth and would start gagging. Saw a psychologist and she believes my brain was working overtime to try to understand why I wasn't tasting anything. Built myself up into anxiety attacks. I have some new breathing exercises to try and have managed to cope so far. There is one funny story, though, in the emergency department they gave me a meal. I thought I would season it with salt in the hope some taste might come. Ate a few pieces of broccoli and my partner asked me to pass the sugar for the tea. You probably guessed by now what happened:) Well, for the first time that day I stopped crying and laughed. Doctor was amazed that I ate vegetables with sugar and didn't notice. I responded with 'told you my taste buds are shot'. They were all so nice and helpful. I had a newlasta shot today, my first one. So I'm home again, and hopefully will feel alright till my last chemo on 4/3. I was being pretty hard on myself, all the medical team said it's a hard gig to do. Oncologist has said she will get me over the line and I trust her. So tonight when I was eating I constantly told myself I will be cancer free and have many more years to taste things and that worked. Just one more thing, my brother presented me with a Dolly Parton concert ticket in the hope it would bring me some joy. My sister is there tonight enjoying a 3 course meal in my place. With my white cells being so low it was not worth the risk. My day will come, I guess. Anyway, ladies, I long for the day when I can do a happy blog for you, hope you are all travelling well, 

Hazel xx

6 Replies

  • Glad you are feeling a a little better today.  Good on you for doing everything your psychologist is telling you to do. I know it is hard to do, I have been down that road about 6 years ago and t is a struggle.  My thoughts are with you and you only have a few weeks to go now and it will be all over.  Your sister sounds lovely and how nice would that be to go to a Dolly Parton concert - something to look forward to :)

    My treatment was filled with drama.  I was at the hospital for 6 hours.  My booking to see onc first and followed by chemo was messed up.  The vein that had been used or first two rounds is no good any more and they had trouble finding a suitable one.  They can only use my left arme because of my auxiliary clearance on right arm.  They had to use a smaller vein on underside of forearem and it was very painful and it took them over two hours to inject the red stuff.  They said it was a record.  I was distressed and felt like a cry baby.  When it was all over I decided I would make a pit stop to the loo before going waiting for my husband to collect me and notice blood on my clothes and then spruting from my vein and all over the floor.  I just about passed out.  I have to have PICC inserted prior to my next treatment and have been assured that it will be easier on me to have my next three treatments.  

    Not looking forward to not being able to swim to exercise my arm though.  Never mind I am glad to be home and just going with the flow.  Feeling pretty fatigued but walked again yesterday and today and swam.  Other than than I am just doing quiet things to distract myself.

    Half way there now.  

    Stay strong and trust that your medical team are going to get you over the line.

    Big hugs and love

    Joy xx

     

  • Thank you for your nice thoughts, feeling almost human today. Yes I did get myself into bother again, my brain was playing silly buggers with me. Felt so bad taking up a hospital bed, but i was so well  looked after and assured that they would get me back on track and over the line. I'm doing everything the psychologist said and it's working, I'm eating small amounts but only the good stuff and I'm not fighting the bad thoughts but I'm slowly replacing them with good thoughts. I'm now keen on having the last treatment, dealing with whatever side effects I get and I will be comforted with the thought that it is the last time I will get. them. For a short time I did consider not having the last, but have now realised I need to. Otherwise, it would make what I have gone through so far a waste of time. Joy, how did your latest treatment go? I did think of you when I was in hospital. I'm thinking I will get a few good days before my last one. My sister just visited and told me she cried when Dolly Parton sang my favourite song. She said next time she does a concert we will go together. Anyway, take care, best wishes to all, 

    Hazel xx

  • I just sent you a private message before reading your blog.  You don't have to bother answering that.

    I am so sorry to hear that you ended back in hospital with a psychological problem as if you don't have enough to go through.  One more to go and you will be done.  We are all cheering you on and look forward to hearing from you when you are feeling up to it.

    Very big hugs to you and praying for peace of mind and that your taste buds start working again real soon.

    Love

    Joy xx

     

  • Thinking of you Hazel. One more chemo to go - you hang in there girl!

    Lots of higs

    Tanya xo

  • You poor love. What a hard time of it you have had. All things considered you are doing amazing. I have a son who would love me to put sugar on his vegetables. At least you haven't completely lost your sense of humour. Hang in there, rest up, we are all cheering for you. Paula x
  • You poor love. What a hard time of it you have had. All things considered you are doing amazing. I have a son who would love me to put sugar on his vegetables. At least you haven't completely lost your sense of humour. Hang in there, rest up, we are all cheering for you. Paula x