Forum Discussion
arpie
4 years agoMember
@Silvergirl - WELCOME TO THE BLOG (that no-one really wanted to join!! :( ) Yes, you can only 'complain to your friends' for 'so long' before they get that 'glazed look' in their eyes - Oh Here she goes again ..... so I rarely mention my aches & pains any more ... I try to remain as active as I can (tho I hate walking - mine is mainly kayaking ....)
Great that you got help from your psychologist .... cos it really DOES muck with your brain! And that Damocles sword hanging over your head re recurrence .... never really leaves either! :(
I keep reading that some Oncs are even recommending just continuing with the AI treatment, even beyond the recommended 5-10 years ..... I'll decide that when I get there!!
@Temple - I had a prat of an Onc like that early on too - and changed Oncs. I now have a lovely female Onc (who is treating both my husband and I) and she is VERY receptive & sympathetic to our side effects (particularly the major ones) & is very active in trying to abate them. She immediately changed me to a different AI & 6 months after that, to another one again. I understand that she also had cancer earlier in her life - so understands it so much better than those Oncs who are only parroting what they've been taught, read about or been told by patients. But it is pretty obvious that your Onc is not listening to you .... so you really should look at getting someone who is 'on your side'.
All the best to everyone xx
Great that you got help from your psychologist .... cos it really DOES muck with your brain! And that Damocles sword hanging over your head re recurrence .... never really leaves either! :(
I keep reading that some Oncs are even recommending just continuing with the AI treatment, even beyond the recommended 5-10 years ..... I'll decide that when I get there!!
@Temple - I had a prat of an Onc like that early on too - and changed Oncs. I now have a lovely female Onc (who is treating both my husband and I) and she is VERY receptive & sympathetic to our side effects (particularly the major ones) & is very active in trying to abate them. She immediately changed me to a different AI & 6 months after that, to another one again. I understand that she also had cancer earlier in her life - so understands it so much better than those Oncs who are only parroting what they've been taught, read about or been told by patients. But it is pretty obvious that your Onc is not listening to you .... so you really should look at getting someone who is 'on your side'.
All the best to everyone xx