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KayP's avatar
KayP
Member
15 years ago

Herceptin

Hello, I hope everyone is having a good day. I am 12 treatments though my course of 17 Hercepton treatments. I am having terrible trouble with my knee joints ( and yes I am an old netballer). Swollen and aching all the time and constantly having to take anti inflammatories and pain killers. I am also taken Tamoxifen which amy also be contributing to the problem. Has anyone else experienced this and does it go away when the treatment stops.

KayP

3 Replies

  • I got diagnosed with inflammatory breast cancer at the beginning of August 2012 and have just had my third round of chemo - and am expected to have three more rounds before surgery and radiation.  I was told by my oncologist that I will be having Herceptin as well with the next chemo treatment.    I feel very fortunate that I am going to be able to access Herceptin at this time - so really want to make sure I put myself in the best position to fully benefit from it.  Does anyone have any tips?

  • Hi Kay,

                I have also had 12 treatments of herceptin and all my bones ache all over, i am 38 and i struggle to get off the lounge somedays. I feel tired all the time so i try and get out to do things but nothing seems to work. I have a very positive outlook on life and most people think i am getting through this with my hands tied behind my back but they dont understand that i think about my cancer every single day. I hope your pain go away soon and good luck with everything xxx Tracey

  • Hi Kay,  And welcome to the site. Thanks for adding a comment about Tamoxifen.   It's nice to get others experience about drugs.  I think I am a lucky one and really don't have too much trouble on Tamoxifen.  My family (mostly my sisters) all think that breast cancer is long gone for me - just coming up to my 4th anniversary.  They don't understand and probably are a bit scared to think that I live with it every day - like the rest of us.  I even have to remind my husband especially on days that I am a bit down.  I lost a very dear and longtime friend to the disease just over 2 years ago.  She had a terrible 5 year fight but never gave up.  I was so inspired by her that I will never give up and I won't complain about any of my symptoms. So I am probably half to blame for my sisters way of thinking.  BUT I will be there to support them or anyone else who may "join the club".  I'm actually getting a little scared about only 1 more year on Tamoxifen because it hasn't given me too much trouble.  I'm not so sure about changing over to the next phase drug.  You are right in your way of thinking - live in the NOW.  I drive my husband mad because I am a bit over the top.  Slowly but slowly I am getting him to think as I do.  He works very hard and has been "programmed" to do so until retirement.  Bugger retirement Live Now I say. Thanks again for your comments. XLeonie