HER2+ ER+ - huge side effects
Hi I was diagnosed with HER2 positive and estrogen positive breast cancer in October 24 Am having chemo / Herceptin - perjeta weekly until 20/1 then prob surgery end of February. As I’m older 73...
Forum Discussion
SO sorry to see that you've joined our select little group here @health123 xx Whack up any questions you have & we'll do our best to give you honest answers from those who've been there, done that xx. I am 73 this year ... diagnosed 7 years ago.
Getting a BC diagnosis can 'do your head in' a bit ... if you feel anxious or sad, give our Helpline a call on 1800 500 258 (Mon-Fri 9-5) for a chat xx. And I'd suggest you have a listen to the Charlotte Tottman Podcasts (she is a BC Counsellor who was diagnosed with BC about 5 years ago & had a double mastectomy, choosing to remain flat, so she knows exactly what we've all been thru.) And she admits that her own reaction to the news/treatments was a bit different from what she'd expected, following her own discussions with patients in the years prior to her own diagnosis. She is very easy to listen to, and talks a lot of sense, from her own experiences.
http://www.drcharlottetottman.com.au/my-podcast.html
I am guessing your progesterone result was positive too? We have a private group for Triple Positive members, where you can chat about your treatment & side effects etc in total privacy, if you'd like to join it? They should have some good tips on reducing the side effects ... Are you taking Gastrostop or similar for the gastro? Usually 2 tablets on the first episode, then one after any following episodes, til it stops? Keeping up your fluids too, will help prevent dehydration - that is very important. The sores are a bit of a worry .... are they open & weeping? When do you see your Onc again (or GP)? That needs to be addressed :(
https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc
Try not to get ahead of yourself (thinking of the 'what ifs') as it will only muck with your brain xx. The diagnosis alone, already does that. :( Try & stay in the 'present' and go from one day to the next, one hour to the next, if need be xx. Keeping yourself as busy as you can (if your side effects allow you) is a good way of stopping the mind from going off in tangents xx. I binge on Netflix a lot, when I need to pass some time ....
You can also read up on other areas of the forum that may interest you, here (including some tick sheets on your mental & physical recovery, post op.) We also chat about art & craft, gardens, furkids & other 'normal' topics xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
Take care & all the best for your ongoing treatment xx
Getting a BC diagnosis can 'do your head in' a bit ... if you feel anxious or sad, give our Helpline a call on 1800 500 258 (Mon-Fri 9-5) for a chat xx. And I'd suggest you have a listen to the Charlotte Tottman Podcasts (she is a BC Counsellor who was diagnosed with BC about 5 years ago & had a double mastectomy, choosing to remain flat, so she knows exactly what we've all been thru.) And she admits that her own reaction to the news/treatments was a bit different from what she'd expected, following her own discussions with patients in the years prior to her own diagnosis. She is very easy to listen to, and talks a lot of sense, from her own experiences.
http://www.drcharlottetottman.com.au/my-podcast.html
I am guessing your progesterone result was positive too? We have a private group for Triple Positive members, where you can chat about your treatment & side effects etc in total privacy, if you'd like to join it? They should have some good tips on reducing the side effects ... Are you taking Gastrostop or similar for the gastro? Usually 2 tablets on the first episode, then one after any following episodes, til it stops? Keeping up your fluids too, will help prevent dehydration - that is very important. The sores are a bit of a worry .... are they open & weeping? When do you see your Onc again (or GP)? That needs to be addressed :(
https://onlinenetwork.bcna.org.au/group/31-triple-positive-breast-cancer-tpbc
Try not to get ahead of yourself (thinking of the 'what ifs') as it will only muck with your brain xx. The diagnosis alone, already does that. :( Try & stay in the 'present' and go from one day to the next, one hour to the next, if need be xx. Keeping yourself as busy as you can (if your side effects allow you) is a good way of stopping the mind from going off in tangents xx. I binge on Netflix a lot, when I need to pass some time ....
You can also read up on other areas of the forum that may interest you, here (including some tick sheets on your mental & physical recovery, post op.) We also chat about art & craft, gardens, furkids & other 'normal' topics xx
https://onlinenetwork.bcna.org.au/discussion/23477/a-big-welcome-to-all-new-online-network-members#latest
Take care & all the best for your ongoing treatment xx