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wendy55's avatar
wendy55
Member
10 years ago

having a bad week

Hi to everyone havent been online as have spent the last 10 days feeling pretty miserable, having been reading some of the previous posts and we all seem to be in the same boat at the moment, perhaps spring will make us feel a little better, my oncologist has stopped my denosunab injections due to having to have a tooth out due to the bone loss creasted by the denosunab, while it works in one way to help the cancer in my spine the down side is the bone loss in my jaw, not everyone gets it so please dont be alarmed maybe its just me, have had a terrible week a combination of things, migraine, sinus, shoulder pain and just feeling plain miserable!! so today made myself get up sent my partner to the chemist for scripts for migraine and have been outside watering some plants and enjoying the sunshine.Its so hard when you are in pain to see the bright side of things no matter how hard you try, we are going away for three days next weekend so hope that will cheer me up, I get so frustrated at not being able to do the simple things when I feel unwell just being able to keep the house clean seems a momentous chore, and when my house isnt clean I get very upset!!! silly I know but thats me, well have had my little spit so feel a bit better now, hope you are all getting by I think that just about sums it up, I saw a lovely caption on facebook the other day about how cancer may affect my body but I will not let it touch my mind, my heart or my soul SO TRUE!!! so ladies chin up, best foot forward, tomorrows another day,

 

wendy 55

4 Replies

  • lesleyb's avatar
    lesleyb
    Member
    10 years ago

    Hi Wendy, so sorry to hear about you having to come off the denosumab.  I have been on it since diagnosis about 10 mths ago. I have regular dental checkups.  At the last one the dentist said my gums were receding badly.  Not what I wanted to hear.  My onc has now spread my injections from monthly to bi-monthly.  I fear I will end up with ONJ myself one day.

    Can you get some sort of home help from the shire/'council to come in one or two days a week to help you with the housework.  Let your pride go and accept some hel.  Sit back and relax.  it doesn't ,matter if your house is not as sparkling clean as it used to be.  I think your family and friends would understand.

    I would also like to mention that there is a wonderful Cancer foundation based in Bendigo Vic. that houses the most amazing country properties on their books that are totally free to breast cancer sufferers.  We took up the option some months ago and went to Daylesford.  The house was amazing.  Fresh linen supplied.  Everything except your food and drinks.  It's called the Otis Foundation so give them a ring if you would like another break.  They can be found on Google as well.

    I hope you thoroughly enjoy your few days away and forget about your cares during this time.

    Lesley x

  • Anonymous's avatar
    Anonymous
    10 years ago

    Hi Wendy, the good weather does brighten us up and out in the garden is good for you. I hope that you have a nice time away on the weekend. Take care, Tracey B ??????

  • rowdy's avatar
    rowdy
    Member
    10 years ago

    Hi Wendy it is hard, maybe your weekend away will help. When I was going through chemo we went away for a couple of days and it helped. When you are away you are not looking at the things that need to be done and a change of environment is always good. People who don't know you and someone not always asking how you are. Sunshine will be here soon and it is true the sun does help, take carex

  • June1952's avatar
    June1952
    Member
    10 years ago

    Hi Wendy

    Agree - what the weather does to us !  I am soooo over the miserable cold days !  I am sure a bit of sun and warmth would do me a lot of good, both body and mind.

    I am having serious relationship problems as my previously SNAG hubby does not like the 'new me'.  It is a year since my mastectomy so he has obviously had time to think about it.

    Reconstruction has been raised but I am not convinced I want to undergo all that surgery for a man !

    Hope your day improves.  Keep smiling.

    Summer  :-(