Forum Discussion
LMK74
9 years agoMember
Got told today chemo failed
Today I met with my surgeon, I'm booked in for right mastectomy and full node clearance for 15th August. He told me chemo has failed and done nothing. Hearing that had my head spinning. I've just spent six long months being poisoned with toxic shit for nothing. I'm due for my very last chemo next Tuesday and unless my oncologist can give me one good reason why I should do it, they can get f##ked. All I can think of is if for the last six months it's done nothing then where else has it spread in the meantime. I feel so pissed off right now and am in tears. Also he said the risk of lymphedema is high given I'll be having radiation as well. Does this mean you have it for life and permanently have to wear compression sleeve. I was told at the beginning of all this it would be just the sentinel node, but seeing as chemo failed the lot have to go. Screw CANCER, there is just so much to look forward to.
109 Replies
- MKitty68Member@LMK74
which hospital are you through Lisa? - LMK74Member@Kat09, 15th of August I'm booked in for mastectomy and full axillary clearance. Pissed off all nodes are going but what can you do. Have you started radiation yet?.
- Kat09MemberIt is great once you get to the last one, I had a bit of a pseudo finish did my last Taxol and then had to go back the following week for Herceptin. While Herceptin isn't chemo I still would've loved not to have to have gone back the next week! I think we are always wary of the unknown , surgery is also causing me a little anxiety but mine is still a couple of months away yet. Do you have a date for your surgery yet @LMK74 ?
- LMK74MemberYes I see it's worked @primek, I'm so technology challenged lol.
- LMK74MemberThanks @Kat09. Such a relief chemo is done. I'm hoping surgery will be no dramas, already feeling nervous.
- primekMember@LMK74 .Yes the tagging works on the phone. It's all I use. :) :)
- Kat09MemberHi Lisa @LMK74 , congrats on finishing your chemo!!! I am also really glad to hear that your Oncologist eased your worries about what your very 'unthinking' surgeon said.
- LMK74MemberThanks @primek, you are such a lovely lady and always helping others here, and able to give good advice being a nurse. It has felt very lonely at times but being here feels like the only place where others get it.
P.S. can you tag someone with a smartphone?. I mostly use my phone or tablet.
I'll see if it works. - primekMemberI'm am so glad you feel much more confident that the chemo has done what it should have. Makes it so worthwhile. Unfortunately I didn't feel supported by my bc nurse locally, I used to contact the ones attached to the hospital that did my surgery instead (500k away) as they seemed more interested. I recently had my changeover surgery and let my local bc nurse know I was back home. She sent me a text saying good. I saw her 6 weeks later, at a coffee shop at the hospital, (last actually spoke 5 months ago when my herceptin stopped early) and she said Oh havent seen you since surgery. And I said...havent seen you in 6 months. But we just had a quick chat. I too feel very alone if it wasn't for the ladies here and a couple I met during chemo.
- LMK74MemberOk, so I had my last chemo today and told my oncologist what surgeon said to me. Basically she said he's talking through his arse. Apparently my last ultrasound showed a vascular response. I said what does that mean. The blood supply to the cancer has stopped. She explained that tumors have their own blood vessels and they can see in the ultrasound there is no supply to it or some such thing. All to bloody technical all the jargon. She also said the pathology report after surgery is the only way they can tell if treatment worked. She said the surgeon had no business saying what he did. I guess they just forget you are an actual person rather than a slab of meat to chop up.
Does anybody else get sick of seeing the registrars only instead of your treating oncologist?. I get how busy they are but "really", at times I have felt they can't be arsed talking to me. I have felt the same with my breast care nurse, I would see her visiting several patients and having long chats and laughs but not coming to see how I'm doing. I'm a public patient so am not complaining seeing as it's free, but I guess I've felt at times a bit unsupported.
I'm glad chemo is finished with, now I'm thinking about upcoming mastectomy and scared,but normal to feel like that.
Thanks to all the wonderful women here and BCNA,for giving us all a place to share and support each other.
Biggest of hugs
Lisa xo