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Does anyone have any insightful questions for me to ask?","kudosSumWeight":0,"postTime":"2018-06-18T11:52:12.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:genetic-testing","text":"genetic-testing","time":"2025-03-25T05:01:42.514-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:80862_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":212},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"body":"I have an appointment to see a genetic oncologist type person tomorrow. The generations in my family are all over the place (some of my first cousins were older than my parents) and I don't know much about what people died from (cancer being a dirty word) and have no-one to ask. Due to this, I'm fairly sure that I will not qualify for any subsidies on genetic testing and cannot afford to pay for it up front. However, as my sister was diagnosed at 32 and died at 45 from an early detected breast cancer, I am very keen to know what the likelihood of it being genetic is, and what that means for treatment for me. Has anyone been in a similar situation and what was the outcome? Does anyone have any insightful questions for me to ask?","customFields":[]},"Conversation:conversation:80862":{"__typename":"Conversation","id":"conversation:80862","solved":false,"topic":{"__ref":"ForumTopicMessage:message:80862"},"lastPostingActivityTime":"2018-06-20T19:28:18.000-07:00","lastPostTime":"2018-06-20T19:28:18.000-07:00","unreadReplyCount":28,"isSubscribed":false},"ModerationData:moderation_data:80862":{"__typename":"ModerationData","id":"moderation_data:80862","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:80862_1":{"__typename":"Revision","id":"revision:80862_1","lastEditTime":"2018-06-18T11:52:12.000-07:00"},"ForumReplyMessage:message:80877":{"__typename":"ForumReplyMessage","id":"message:80877","conversation":{"__ref":"Conversation:conversation:80862"},"author":{"__ref":"User:user:20569"},"revisionNum":1,"uid":80877,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: Genetics Appointment","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:80877"},"parent":{"__ref":"ForumTopicMessage:message:80862"},"body":"I had my appointment today. The genetics oncologist was really helpful and went through my family tree (which was rather challenging as my cousins' grandchildren are older than me and there are so many knowledge gaps). In her opinion, it is more likely than not, that there is a hereditary factor with my only sibling having bc at 32. I qualify for the free genetic Braova test and will go ahead with that, although it is quite possible that it may come out negative. From there, depending on the results, we will have further discussions regarding further direction which may include decisions about taking the other breast and possibly ovaries. It also has implications for my kids and nephews as to when they start getting screened.
Thanks for you help, everyone.","body@stringLength":"807","rawBody":"I had my appointment today. The genetics oncologist was really helpful and went through my family tree (which was rather challenging as my cousins' grandchildren are older than me and there are so many knowledge gaps). In her opinion, it is more likely than not, that there is a hereditary factor with my only sibling having bc at 32. I qualify for the free genetic Braova test and will go ahead with that, although it is quite possible that it may come out negative. From there, depending on the results, we will have further discussions regarding further direction which may include decisions about taking the other breast and possibly ovaries. It also has implications for my kids and nephews as to when they start getting screened.
Thanks for you help, everyone.","kudosSumWeight":0,"repliesCount":0,"postTime":"2018-06-20T02:08:03.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:80877_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"customFields":[],"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}}},"CachedAsset:theme:customTheme1-1744167669796":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167669796","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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It is tough when any choices have to be made and they are not clear cut. My decision re chemo was clear cut (stats for my pathology were 17% better off to have it). Your situation is very different and I honestly don’t know what I would have done in that situation. Sorry no help I know!
I was 47 when diagnosed and did start off on Tamoxifen after chemo etc. But, when my periods returned a year or so after chemo put me into (obviously temporary) menopause, it was recommended to do something more permanent so I could switch to an Aromatase inhibitor.
I chose to remove my ovaries and tubes and then went onto Femara (Letrozole). Surgery was laparoscopic and recovery was quick. As I had already been through menopause of sorts during chemo I found that my side effects were not too dramatic after the ovaries were removed. Of course there are the usual side effects of Femara (joint pain mostly and vaginal dryness). I am now almost 5 years from diagnosis and have found ways to live well with any side effects. This network is great for support and practical advice.
I wish you all the best with your decision making. This is a decision that only you can ultimately make but I am sure that others who have faced the ‘to chemo or not’ question will be able to explain their thought process in helpful ways. Take care. xxx","body@stringLength":"1410","rawBody":"Hello @Roxette69, Ah for a crystal ball! It is tough when any choices have to be made and they are not clear cut. My decision re chemo was clear cut (stats for my pathology were 17% better off to have it). Your situation is very different and I honestly don’t know what I would have done in that situation. Sorry no help I know!
I was 47 when diagnosed and did start off on Tamoxifen after chemo etc. But, when my periods returned a year or so after chemo put me into (obviously temporary) menopause, it was recommended to do something more permanent so I could switch to an Aromatase inhibitor.
I chose to remove my ovaries and tubes and then went onto Femara (Letrozole). Surgery was laparoscopic and recovery was quick. As I had already been through menopause of sorts during chemo I found that my side effects were not too dramatic after the ovaries were removed. Of course there are the usual side effects of Femara (joint pain mostly and vaginal dryness). I am now almost 5 years from diagnosis and have found ways to live well with any side effects. This network is great for support and practical advice.
I wish you all the best with your decision making. This is a decision that only you can ultimately make but I am sure that others who have faced the ‘to chemo or not’ question will be able to explain their thought process in helpful ways. Take care. 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