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Dot42's avatar
Dot42
Member
14 years ago

Full hysterectomy

Well ladies what a fright I had today.  I have been having gynaecolgy promblems. Had ultrasound, they weren't happy with the growth on my uterus so I had a hysteroscope and a D&C.  Had to get my results today. My normal doctor was not at the hospital so I saw someone different.  The doctor says to me I am sorry to tell you this but you tested positive.  My heart drop so fast and I almost burst out crying. In shock I repeated I am positive.  She then says yes to the BRCA2 gene to genetic breast cancer.  I replied I already know this I am here to get my results from the hysteroscope. 

So it is all good, It is benign but the doctor explain that with these problems and tamoxifen increasing the risk of cancer of uterus plus I have this BRCA2 gene, they are not prepared to take chances with it and I have to have a full hysterectomy.  Well I wanted my ovaries remove after finding out about my genes except now I have to have everything remove ovaries, fallopian tubes, uterus and cervix.  The one great thing is no more pap smears.  

So have any of you had a hysterectomy and how long did it take for you to recover.

Any advice will be great.

Dot xo

12 Replies

  • Yes Sarah I got life insurance, I got it when I was in my twentys before my mum died.  Even before I got breast cancer or diagnose with BRAC2 I was refuse getting Trauma insurance because of such a strong family history of breast cancer.  I guess they were right because now I got breast cancer. Even check private health in case that is affected or higher premiums.

    Thanks Hilary for your wishes.  I still have 2 little ones in primary school so I need to be prepared if I can't drive them to school.  Oh can I walk , it will be take about 20 minutes to walk there and then of course back again. Otherwise I will need to organise someone to take them.

    Thanks

    Dot xxx

     

  • Thanks for your reply. There is a keyhole hysterectomy called a laparoscopic assisted vaginal hysterectomy which by it's description is done both vaginally and with some tiny cuts. We do these from time to time and they have the same recovery as the vaginal hysterectomy.

    When I was talking to my Onco about the genetic testing he told me to make sure I had all my life insurance etc sorted before testing and to tell my sisters as it can lead to problems if you have had genetic testing, so before your daughters get tested just check.

    Good luck

    Love Sarah x

  • Thanks girls for all your wishes and advice, that gives me a bit of an idea, what to expect and when will I be able to do things again. Even though I can't lift things will I be tired and exhausted this whole time or I will be able to do most things normally.  Someone said I am not allowed to drive after a hysterectomy, is that true and how long.  

    The doctor said I had to be referred to oncology gynaecologist instead of an ordinary gynaecologist because of the BRAC2 gene.  The doctor thought maybe I might be able to have keyhole surgery, but from the information I received having ovaries, tubes, uterus and cervix removed  I think it might be abdominal.  Once I know more I will let you know.

    I agree with you Maria, I had my children, I don't need them.  Plus with them gone it will be one less thing to worry about getting cancer there.

    To Sarah, good luck with your genetic test.  It definitely is hard, getting this diagnosis, not only did I have to tell all family members on my mother's side but I have 4 girls from age 10 to 17.  So now when they turn 18 they have to get tested, to see if they inherited it from me.   The great thing is now everyone else will be monitored closely. 

    Thanks again girls for the help.

    Dot xxx

     

  • Thanks girls for all your wishes and advice, that gives me a bit of an idea, what to expect and when will I be able to do things again. Even though I can't lift things will I be tired and exhausted this whole time or I will be able to do most things normally.  Someone said I am not allowed to drive after a hysterectomy, is that true and how long.  

    The doctor said I had to be referred to oncology gynaecologist instead of an ordinary gynaecologist because of the BRAC2 gene.  The doctor thought maybe I might be able to have keyhole surgery, but from the information I received having ovaries, tubes, uterus and cervix removed  I think it might be abdominal.  Once I know more I will let you know.

    I agree with you Maria, I had my children, I don't need them.  Plus with them gone it will be one less thing to worry about getting cancer there.

    To Sarah, good luck with your genetic test.  It definitely is hard, getting this diagnosis, not only did I have to tell all family members on my mother's side but I have 4 girls from age 10 to 17.  So now when they turn 18 they have to get tested, to see if they inherited it from me.   The great thing is now everyone else will be monitored closely. 

    Thanks again girls for the help.

    Dot xxx

     

  • Hi Dot

    I had a full complete hysterectomy 2 years before my bc diagnosis and I had the abdominal surgery. I was in hospital for 3 days and it only took about another 5 days before I was relatively pain free but your not capable of lifting say the washing basket or anything for approx another week or 2 but all up it is about 6 - 8 week before full recovery. 

    Best of Luck I hope it all goes well for you

    Sue xx

  • Hi Dot

    I'm so glad that it was nothing more!  You scared me there for a minute!!!  I'm sure it will be as traumatic having the hysterectomy as it was losing your breast but you're tough and I'm sure you will be fine.  At least you won't have to worry any more about ovarian cancer and, as you said, no more Pap smears (yay!!)

    Take care and let us know how you go,

    Louise x

  • I got the heart dropping fast with your positive comment - then reading on, phew.

    I had my ovaries and tubes removed (keyhole surgery) due to my cancer being hormone positive. Figured we have our children so out they go. Was no more painful than bad period pain really and only overnight in hospital. I stayed in a few extra days due to having a second axillary dissection. Still went home early with drain, I had had enough of the nurses coming in to check up on me every few hours.

    Just as Sarah has said you can opt to have vaginal or abdominal. My friend had a vaginal hysterectomy (not because of cancer) she was in for 2 days and so happy with her results. Less down time is always a better option I say.

    All the very best.

    Maria333

  • I got the heart dropping fast with your positive comment - then reading on, phew.

    I had my ovaries and tubes removed (keyhole surgery) due to my cancer being hormone positive. Figured we have our children so out they go. Was no more painful than bad period pain really and only overnight in hospital. I stayed in a few extra days due to having a second axillary dissection. Still went home early with drain, I had had enough of the nurses coming in to check up on me every few hours.

    Just as Sarah has said you can opt to have vaginal or abdominal. My friend had a vaginal hysterectomy (not because of cancer) she was in for 2 days and so happy with her results. Less down time is always a better option I say.

    All the very best.

    Maria333

  • I had a hysterectomy when I was 37 (I am 45 now) because of gynecology problems, but I kept my ovaries. I found it hard to get over, very sore for a long time. I must admit back then I was quite unfit, overweight, which I'm sure made recovering a very slow process. I didnt feel myself again for 8-12 months. I am happy to say now even though I have bc now and am having chemotherapy, I am fitter, less overweight (still have some to lose) and am very happy I had the operation. Hope that helps a little. Love Penny xx
  • I had a hysterectomy when I was 37 (I am 45 now) because of gynecology problems, but I kept my ovaries. I found it hard to get over, very sore for a long time. I must admit back then I was quite unfit, overweight, which I'm sure made recovering a very slow process. I didnt feel myself again for 8-12 months. I am happy to say now even though I have bc now and am having chemotherapy, I am fitter, less overweight (still have some to lose) and am very happy I had the operation. Hope that helps a little. Love Penny xx