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Mares
12 years agoMember
First FEC chemo treatment 3 cycles
Happy Mother's Day to you all! I have had a beautiful day and feel very spoilt and blessed.
I started my first round of chemo on Thursday, they started me on a low dose due to my autoimmune disease (dermatomyositis). My bone and chest scan came back all clear except I have an enlarged gland in my neck. They are hoping that it maybe an inflammed gland due to mastectomy. So I am off for another ultral sound and possible biopsy. Please pray for me on Tuesday!
I am on fluorouracil, epirubicin and cycolphopshamide for 3 cycles. Then I go on to Docetaxel for the same nature of cycle. I have had an injection of neulasta to control the white blood platelets the day after chemo. This again is due to my DM condition. I am so blessed that they are so attentive to the complexity of my condition..
I have been taking maxolon to treat nausea and so far so good. I have also taken dexmethsone for nausea, 3 days after chemo but can't take steroids with this. I am back on steroids (15mg) tomorrow.I do get the odd flare especially during the morning and evening since not taking the steroids. They are trying to taper me off the steroids. I am now down to 15 mg and then 10 mg next week. I will meet with my rheumy this week. Hope the steroid taper is not going to do my head in!!!
Thank you all so much for your tips to make my first chemo cycle smooth, fingers crossed Wk 2 is not too gruesome as anticipated.. I am now bracing myself for the hair appointment to get the head shave done. Lucky it is going to Winter here, I get to wear cool Winter hats!! Have a great week everyone!
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22 Replies
- MaresMember
Good to hear you made it to Kal and you live in such a beautiful part of the world. We went to Esperance tor a weekend when we lived in Kambalda and I still have a tea towel. Have you ever been to Brisbane? It's such a long way for you to travel.
I know there are so many things to contend with on this chemo journey. N'er a dull moment! I have spoken to my latest update in my message to you. Take good care and here's to a better week! Hugsx
Sign in to react to this post - Annie88Member
Hi Mares, Yes did make it to Kal and had a lovely couple of days, as you say nice to be away from the home environment for a little. I actually live in Esperance, which as you would know isn't that far from Kalgoorlie, about 4 hrs. Really amazing the history there, just loved wandering through the museum and spent ages at the lookout for the super pit. Unfortunately missed a tour, being a long weekend were booked out, never mind, maybe another trip.
Wow I can't believe you seem to have so many of the same problems as I have, bloody cold sores, seem to have permanent cold, and generally feel miserable. The spaced out one is really weird, and I have actually not gone out in the car a few times, just don't feel co ordinated enough to be confident driving, and for me that is a big thing, having always driven myself everywhere, whenever. Sore throat, well that seems to be a permanent part of life these days. Eeeek, what a lot of complaints I have this morning, must have climbed out of bed on the wrong side!!!!
Well guess better get a bit organised and start the day proper, more coffee and then shower. Hope you are doing okay still and have a good day today. xx
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