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Well a few weeks ago I wasn't traveling very well, as we know too well that emotional roller coaster! I have since had an appointment with a Psychologi...","body@stringLength":"1461","rawBody":"Hello My Fellow Courageous Beautiful Friends!!!! Well a few weeks ago I wasn't traveling very well, as we know too well that emotional roller coaster! I have since had an appointment with a Psychologist I saw 3 yrs ago and it was invaluable. It helped incredibly to try and put it all into perspective. She pointed out that our logical thinking comes from the frontal lobe but unfortunately my emotional body hasnt caught up to the logic of whats happening eventhough I know it has to happen because it makes sense. The other thing she pointed out is the attachment I have to my physicality and all my bits and pieces, of course am human this is what we are...but this is not the essence of who I am..I am so much more than that and the irony is when people see me they dont see my physicality they see the depths of the person I am. Somehow separating myself a little in that way has helped with letting go. The other thing was she said I was grieving, grieving the loss of my breast, grieving the struggle the past 6 years all very valid and is important. I feel I turned a corner. I finished work yesterday and the reality hit as I drove home in tears even at my age wishing my MUM was here to wipe them away...OH DEAR LOL So honestly?? I am incredibly nervous!!! and yeah scared of the whole thing, the pain of it, recovery...the end result...but am calm and trying to do one day at a time...just get to Monday and get to surgery thats all!!!! PHEW!!! ","kudosSumWeight":0,"postTime":"2017-02-23T01:46:38.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"tags":{"__typename":"TagConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDE","node":{"__typename":"Tag","id":"tag:anxiety","text":"anxiety","time":"2025-03-25T05:01:46.886-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDI","node":{"__typename":"Tag","id":"tag:emotions","text":"emotions","time":"2025-03-25T05:01:41.462-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}},{"__typename":"TagEdge","cursor":"MjUuMnwyLjF8b3wxMHxfTlZffDM","node":{"__typename":"Tag","id":"tag:Reconstruction","text":"Reconstruction","time":"2024-10-22T16:42:44.606-07:00","lastActivityTime":null,"messagesCount":null,"followersCount":null}}]},"timeToRead":2,"currentRevision":{"__ref":"Revision:revision:68157_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":1437},"visibilityScope":"PUBLIC","canonicalUrl":null,"seoTitle":null,"seoDescription":null,"isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"archivalData":null,"customFields":[],"body":"Hello My Fellow Courageous Beautiful Friends!!!! Well a few weeks ago I wasn't traveling very well, as we know too well that emotional roller coaster! I have since had an appointment with a Psychologist I saw 3 yrs ago and it was invaluable. It helped incredibly to try and put it all into perspective. She pointed out that our logical thinking comes from the frontal lobe but unfortunately my emotional body hasnt caught up to the logic of whats happening eventhough I know it has to happen because it makes sense. The other thing she pointed out is the attachment I have to my physicality and all my bits and pieces, of course am human this is what we are...but this is not the essence of who I am..I am so much more than that and the irony is when people see me they dont see my physicality they see the depths of the person I am. Somehow separating myself a little in that way has helped with letting go. The other thing was she said I was grieving, grieving the loss of my breast, grieving the struggle the past 6 years all very valid and is important. I feel I turned a corner. I finished work yesterday and the reality hit as I drove home in tears even at my age wishing my MUM was here to wipe them away...OH DEAR LOL So honestly?? I am incredibly nervous!!! and yeah scared of the whole thing, the pain of it, recovery...the end result...but am calm and trying to do one day at a time...just get to Monday and get to surgery thats all!!!! PHEW!!! "},"Conversation:conversation:68157":{"__typename":"Conversation","id":"conversation:68157","solved":false,"topic":{"__ref":"ForumTopicMessage:message:68157"},"lastPostingActivityTime":"2017-03-12T16:31:13.000-07:00","lastPostTime":"2017-03-12T16:31:13.000-07:00","unreadReplyCount":136,"isSubscribed":false},"ModerationData:moderation_data:68157":{"__typename":"ModerationData","id":"moderation_data:68157","status":"APPROVED","rejectReason":null,"isReportedAbuse":false,"rejectUser":null,"rejectTime":null,"rejectActorType":null},"Revision:revision:68157_1":{"__typename":"Revision","id":"revision:68157_1","lastEditTime":"2017-02-23T01:46:38.000-08:00"},"ForumReplyMessage:message:68255":{"__typename":"ForumReplyMessage","id":"message:68255","conversation":{"__ref":"Conversation:conversation:68157"},"author":{"__ref":"User:user:19492"},"revisionNum":1,"uid":68255,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:general-treatment-and-surgery"},"subject":"Re: Final Countdown 3 days to go for Mastectomy and Diep Flap reconstruction....YIKES!!!!!!","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:68255"},"parent":{"__ref":"ForumTopicMessage:message:68157"},"body":"Hi Mel, I'm thinking of you and hope your day has been a little better. I would suggest you write down all the things you are unhappy with so you can let them know and not forget to tell them anything at your appointment tomorrow. Make sure you get a wheelchair to go up to your appointment, they are usually inside the entrances of most hospitals, or ask at reception when you go in to borrow one, and of course have someone push it for you. I also strongly suggest you write your story and the issues you have had on patientopinion.org.au. You can select the hospital (it's Australia wide), and they will have to investigate and respond at the highest level. They need to improve this for future patients, it sounds like your experience has been terrible and could have been so much better. To put you in the too hard basket just because you can't take some things is just not good enough. Sending big hugs to you, as you always send them to others Kate x","body@stringLength":"962","rawBody":"Hi Mel, I'm thinking of you and hope your day has been a little better. I would suggest you write down all the things you are unhappy with so you can let them know and not forget to tell them anything at your appointment tomorrow. Make sure you get a wheelchair to go up to your appointment, they are usually inside the entrances of most hospitals, or ask at reception when you go in to borrow one, and of course have someone push it for you. I also strongly suggest you write your story and the issues you have had on patientopinion.org.au. You can select the hospital (it's Australia wide), and they will have to investigate and respond at the highest level. They need to improve this for future patients, it sounds like your experience has been terrible and could have been so much better. To put you in the too hard basket just because you can't take some things is just not good enough. Sending big hugs to you, as you always send them to others Kate x","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-03-05T22:38:54.000-08:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:68255_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}}},"CachedAsset:theme:customTheme1-1744167669796":{"__typename":"CachedAsset","id":"theme:customTheme1-1744167669796","value":{"id":"customTheme1","animation":{"fast":"150ms","normal":"250ms","slow":"500ms","slowest":"750ms","function":"cubic-bezier(0.07, 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I'm caring for radiation burn and dermatitis on both armpit, chest wall and under breast. Quite uncomfortable, itchy, painful where skin is broken and in places where skin is in process of breaking down. I've been told the radiation will 'peak' over the next two weeks then begin to heal.
Also about every third day have fatigue that blesses me with a 10-12 hour sleep! Having a few weeks to deal with skin before starting aromitose inhibitor (AI) Letrizole (2.5mg). Originally medical oncologist wanted me to take Tamoxifen however has changed to Letrizole. There's very little online or on BCNA re this particular AI- apparently has different and often less side effects to Tamoxifen? Keen to hear others experience. I've got to 55 and never in my life taken any medication...thinking about having to take this for 5+ years is galling. Im working on reframing it as a 'good' thing but I'm not there yet! I've managed to continue to exercise (daily walks of 3-5 kms, 15-30 mins of cardio activity)...and am supporting my healing with good nutrition. Caring for self at the moment is a full time job!","body@stringLength":"1321","rawBody":"Four weeks of daily radiation completed yesterday ✅ The fallout of being well endowed (20DD) and a post menopausal 55 year old is some skin issues. I'm caring for radiation burn and dermatitis on both armpit, chest wall and under breast. Quite uncomfortable, itchy, painful where skin is broken and in places where skin is in process of breaking down. I've been told the radiation will 'peak' over the next two weeks then begin to heal.
Also about every third day have fatigue that blesses me with a 10-12 hour sleep! Having a few weeks to deal with skin before starting aromitose inhibitor (AI) Letrizole (2.5mg). Originally medical oncologist wanted me to take Tamoxifen however has changed to Letrizole. There's very little online or on BCNA re this particular AI- apparently has different and often less side effects to Tamoxifen? Keen to hear others experience. I've got to 55 and never in my life taken any medication...thinking about having to take this for 5+ years is galling. Im working on reframing it as a 'good' thing but I'm not there yet! I've managed to continue to exercise (daily walks of 3-5 kms, 15-30 mins of cardio activity)...and am supporting my healing with good nutrition. Caring for self at the moment is a full time job!","kudosSumWeight":0,"repliesCount":0,"postTime":"2017-10-23T19:11:12.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:104930_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"parent":{"__ref":"ForumTopicMessage:message:104926"},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[]},"QueryVariables:ReplyList:message:90048:1":{"__typename":"QueryVariables","id":"ReplyList:message:90048:1","value":{"id":"message:90048","first":10,"sorts":{"postTime":{"direction":"DESC"}},"repliesFirst":3,"repliesFirstDepthThree":1,"repliesSorts":{"postTime":{"direction":"DESC"}},"useAvatar":true,"useAuthorLogin":true,"useAuthorRank":true,"useBody":true,"useKudosCount":true,"useTimeToRead":false,"useMedia":false,"useReadOnlyIcon":false,"useRepliesCount":true,"useSearchSnippet":false,"useAcceptedSolutionButton":true,"useSolvedBadge":false,"useAttachments":false,"attachmentsFirst":5,"useTags":false,"useNodeAncestors":false,"useUserHoverCard":false,"useNodeHoverCard":false,"useModerationStatus":true,"usePreviewSubjectModal":false,"useMessageStatus":true}},"CachedAsset:text:en_US-shared/client/components/users/UserAvatar-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/users/UserAvatar-1742938040000","value":{"altText":"{login}'s avatar","altTextGeneric":"User's avatar"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/ranks/UserRankLabel-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/ranks/UserRankLabel-1742938040000","value":{"altTitle":"Icon for {rankName} rank"},"localOverride":false},"CachedAsset:text:en_US-shared/client/components/nodes/NodeIcon-1742938040000":{"__typename":"CachedAsset","id":"text:en_US-shared/client/components/nodes/NodeIcon-1742938040000","value":{"contentType":"Content Type {style, select, FORUM {Forum} BLOG {Blog} TKB {Knowledge Base} IDEA {Ideas} OCCASION {Events} other {}} icon"},"localOverride":false},"ForumReplyMessage:message:90048":{"__typename":"ForumReplyMessage","id":"message:90048","customFields":[],"revisionNum":1,"attachments":{"__typename":"AttachmentConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"author":{"__ref":"User:user:16420"},"uid":90048,"depth":1,"hasGivenKudo":false,"subscribed":false,"board":{"__ref":"Forum:board:surgery"},"conversation":{"__ref":"Conversation:conversation:90035"},"subject":"Re: Surgery cancelled","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:90048"},"body":"Hi rowdy\nThanks for your support. I will put it in writing. It is therapeutic for me to feel I have some power back for myself and also because it is a new hospital, I want to advocate for future BC surgery patients that they don't get dismissed quite so easily. \nTake care on your journey.\nLindaN x","body@stringLength":"302","rawBody":"Hi rowdy\nThanks for your support. I will put it in writing. It is therapeutic for me to feel I have some power back for myself and also because it is a new hospital, I want to advocate for future BC surgery patients that they don't get dismissed quite so easily. \nTake care on your journey.\nLindaN 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Surgery cancelled","readOnly":false,"editFrozen":false,"moderationData":{"__ref":"ModerationData:moderation_data:90047"},"body":"Hi Snazzy\nHope your surgery has gone well for you yesterday. Thinking of you. Thanks for the support hun.\nLove Linda x","body@stringLength":"120","rawBody":"Hi Snazzy\nHope your surgery has gone well for you yesterday. Thinking of you. Thanks for the support hun.\nLove Linda x","kudosSumWeight":0,"repliesCount":0,"postTime":"2015-03-21T01:44:22.000-07:00","images":{"__typename":"AssociatedImageConnection","edges":[],"totalCount":0,"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"attachments":{"__typename":"AttachmentConnection","pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null},"edges":[]},"timeToRead":1,"currentRevision":{"__ref":"Revision:revision:90047_1"},"latestVersion":null,"metrics":{"__typename":"MessageMetrics","views":0},"visibilityScope":"PUBLIC","isEscalated":null,"placeholder":false,"originalMessageForPlaceholder":null,"messagePolicies":{"__typename":"MessagePolicies","canModerateSpamMessage":{"__typename":"PolicyResult","failureReason":{"__typename":"FailureReason","message":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","key":"error.lithium.policies.feature.moderation_spam.action.moderate_entity.allowed.accessDenied","args":[]}}},"parent":{"__ref":"ForumTopicMessage:message:90035"},"replies":{"__typename":"MessageConnection","edges":[],"pageInfo":{"__typename":"PageInfo","hasNextPage":false,"endCursor":null,"hasPreviousPage":false,"startCursor":null}},"customFields":[]}}}},"page":"/forums/ForumMessagePage/ForumMessagePage","query":{"boardId":"general-treatment-and-surgery","messageSubject":"final-countdown-3-days-to-go-for-mastectomy-and-diep-flap-reconstruction-yikes","messageId":"68157","replyId":"68255"},"buildId":"Btkyb7T6TeYM9D2gUmiOv","runtimeConfig":{"buildInformationVisible":false,"logLevelApp":"info","logLevelMetrics":"info","openTelemetryClientEnabled":false,"openTelemetryConfigName":"breastcanceraus","openTelemetryServiceVersion":"25.2.0","openTelemetryUniverse":"prod","openTelemetryCollector":"http://localhost:4318","openTelemetryRouteChangeAllowedTime":"5000","apolloDevToolsEnabled":false,"inboxMuteWipFeatureEnabled":false},"isFallback":false,"isExperimentalCompile":false,"dynamicIds":["./components/seo/QAPageSchema/QAPageSchema.tsx","./components/community/Navbar/NavbarWidget.tsx","./components/community/Breadcrumb/BreadcrumbWidget.tsx","./components/messages/TopicWithThreadedReplyListWidget/TopicWithThreadedReplyListWidget.tsx","./components/messages/RelatedContentWidget/RelatedContentWidget.tsx","./components/messages/MessageListForNodeByRecentActivityWidget/MessageListForNodeByRecentActivityWidget.tsx","./components/customComponent/CustomComponent/CustomComponent.tsx","./components/messages/MessageView/MessageViewStandard/MessageViewStandard.tsx","../shared/client/components/common/List/ListGroup/ListGroup.tsx","./components/messages/MessageView/MessageView.tsx","./components/messages/MessageView/MessageViewInline/MessageViewInline.tsx","../shared/client/components/common/Pager/PagerLoadMore/PagerLoadMore.tsx","./components/customComponent/CustomComponentContent/HtmlContent.tsx","./components/customComponent/CustomComponentContent/CustomComponentScripts.tsx","../shared/client/components/common/List/UnwrappedList/UnwrappedList.tsx","./components/tags/TagView/TagView.tsx","./components/tags/TagView/TagViewChip/TagViewChip.tsx"],"appGip":true,"scriptLoader":[]}