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hdubs's avatar
hdubs
Member
14 years ago

Feel like a real cow bringing this up.

My husband's 85 year old father is very ill in hospital at the moment.  He may not make it.  It is a very sad and hard time for us all, especially for my husband who has had to deal with my cancer last year and the ongoing uncertainty of our lives post-treatment. 

My husband's sister and her husband, three grown-up kids and their partners came over from interstate to be with my father-in-law during this time.  We are all banding together to give him and my mother-in-law (also 85 years old) as much support as possible and leaving it in the hands of the excellent medical staff to get him through this. Our neighbour of 14 years has popped over to give us her support and encouragement and left us a terrific voicemail message.

The thing that really hurts, and has hurt since I got diagnosed, is that these people were not "there" for me when I was diagnosed last year, had 8 chemos, neutropenia, a mastectomy and, basically, thought I was going to die.  Same with relatives on my side of the family.  Other friends that I've had for 15 and 20 years just disappeared off the face of the planet and didn't turn up again until about now when I'm 18 months post diagnosis.

Just thinking about this used to make me cry buckets and wonder whether I was such a bad friend/relative for them to abandon me like that.

Really, would it have killed them to put a card in the post!  Isn't stuff like that what you do when someone's poorly and needs support?

This has been something I've wanted to post about for a while but it makes me sound like such a whiny cow, especially now that these feelings have resurfaced during my father-in-law's illness. 

Does anyone have any words of wisdom?

Helen.

7 Replies

  • Hi Helen, I just read this blog and with my own experience - I shake my head in wonder, they say people are 'scared' and 'don't know how to deal with it' - gee lucky for them they haven't got cancer!  I remember when I went in for my first operation - my husband actually 'text messaged' my children to let them know I was out of surgery - he was pretty stunned that none of then had rung me the night before....In another surgery had my port inserted and the doctore hit an artery (apparently my arteries a bit higgeldy piggeldy) but no one seemed all that concerend.  I was glad I had my husband with me - because I have found it a very lonely road in general.  I have a couple of friends interstate and an aunt who ring me regularly - apart from that, it is indeed a lonely road - and frightening for us who are going through it - this site has saved my sanity on many occasion - Hope your father-in-law is ok,  x x x hugs Josie

  • Dear Leonie, Kathy, Al, Sam and Celeste,

    Thank you all so much for your posts.  I asked for words of wisdom and I sure got them!!!

    I agree with what Celeste mentioned.  The people who I felt abandoned me were scared and uncomfortable about the cancer and couldn't get over it.  And I agree with Leonie that I've got to let these people go now and remember the surprising new friends who popped out of the blue when I got diagnosed, the wonderful support from the medical staff who treated me and the constantly inspiring ladies like you on this site.

    Thanks also for your wishes for my father-in-law.  He had successful open heart surgery this morning.  He's not out of the woods yet but I have a feeling he'll be OK.

    Thanks again to you all,

    Helen.

  • Anonymous's avatar
    Anonymous

    Hi Helen, I have to agree with all thats been said previously! I too was totally surprised at the reaction of some people who i expected to be there for me, but weren't. On the otherhand other people who I didn't expect to support me were wonderful. I have a neighbour who used to smile and wave and chat to me every time she saw me outside..... until I got sick. Suddenly, when I lost my hair and was outside in the garden or walking to my car, she'd scurry away inside the house. She withdrew contact with me. Finally when my hair grew back and I was out in the garden one day, she came over to me and said "Hello Celeste, are you ok now? I heard from the other neighbours that you had cancer, and saw you lost your hair. I must apologise because I just felt so uncomfortable and didn't know what to say to you. I'm sorry I wasn't able to handle it...I just didn't know what to say". She was genuinely upset and sad that she wasn't able to be there for me. I realised at that moment it was her problem, not mine. She was the one with the "issues", not me. She felt guilty and miserable, and was seeking my forgiveness. I responded with kindness and told her that I understood her fear...she was not being malicious...she just couldn't cope with my illness. A BC diagnosis affects everyone differently, and although its hard, we must accept that. Surround yourself with positive, supportive people and leave the rest behind, even if only temporarily. My neighbour and I are back to our friendly ways now and all is good. Take care, Celeste x

  • I can't say anymore than the above wonderful NEW support gals have wriitten...this band of pink ladies are always here to support u as only we can understand..friends who have not endured what we go thru on a daily basis often avoid seeing u for fear of saying the wrong thing/not knowing what to say at all...which is difficult for us, but easier for them.

    My family and i are living with (and have from VERY early diagnosis) secondary cancer. So i know unless they find a cure this will eventually take over and break my body down too far at some point, but i remain confidant that the new drugs they develop constantly will keep me around for a long time yet..BUT in the meantime I have changed a lot about my life..no more work for me (treatment keeps me lying low anyway), i am enjoying more family time, friend time and "smelling the roses" time. I have days when i find myself still falling apart, having a meltdown or just bursting into tears and having a good old fashioned bawl!! but then i feel better, its out of the system for a while again..

    Do whatever works for you-to make u feel better-and bugger the rest of them!!

    Hopefully the situation with your father in law doesn't 'drag' on too long, just makes things so much more stressful for all concerned-we have just had my husbands grandmother pass (in her 93rd year)..physically healthy till about a month ago (apart from some dementia issues)..so altho sad, she had a wonderful life & u couldn't wish for her to stay in the vegetative state she was in at the end.

    Hope u can find some peace and something nice to do for yourself-u deserve it-this crappy disease takes enough of our energy and thoughts!

    Sam  :)  xx

  • Hi I've been thinking the exact same thing for so long now. I'm in a  similiar situation with family and friends as you are Helen. I feel cheated but I'v also met some amazing people that have stuck by me and supported me. My so called friends of 10-15 years are no where to be seen but others and those that are so positive are there for me. Most people who haven't been through what we have been through don't understand and it does scare them. I, too have learnt to accept what I have and try my best to get on with it. I'm growing in confidence everyday and tring hard to stay positive. I have changed for the better because of this and feel more in control of trivial things than I have in a long time. I am me and will always be and people just have to accept it. Letting other people go who aren't there for us and surrounding ourselves with positive, happy people is definitely great advice Leonie!

    Take care and continue to stay positive and definitely look after number ONE!!!Good luck with your family situation  and I wish you all the best.

    Your pink sister,

    Al xxx

  • hi helen and leonie.

     well said leonie. we are / were shit scared at diagnosis and most people do not know how to deal with it, so they probably just kept their distance.

     life goes on, and there are always things to deal with. i am sorry to hear your husband's father is very unwell. it must put a lot of strain on you all at this time.

     helen ,glad you voiced you would have appreciated a card; maybe people will learn from your comment.

     i used to cry at things sometimes. it would just creep up on me and i would weep. let the tears flow and express what you feel. it is ok to feel the way you do, and no you are not a cow.

    i have also learnt to try and " accept what is" since my diagnosis.

    be kind to yourselves. you have been through a lot as an individual, and as a family. and it looks like it is not over yet. do something nice if you can, a picnic or an evening out, or whatever you enjoy.

    love Kathy.

  • Hi Helen

    Don't feel bad about whinging and whining.  People don't understand that we live with this 24/7. "Put it all behind you now - you are finished treatment" is what I have heard so many times.  Bullshit - bc never goes away.  We need to live as best of lives as we can.  I (think) that I am finally getting through to my husband (he has been really good BUT) that we need to do nice things for ourselves NOW.  "What about our retirement money??"  I reminded him that I may not be around in old age and I'm nearly retired now (55 and looking to go back to work in January only if I am well enough).   On the outside most of us look really well but we still have to cope with ongoing medication/treatment etc and others don't understand that there are always side affects.  If I was you - and I'm not- I would just continue to be ME.  Do what you can, don't do what you can't, enjoy what you like and bugger the rest.  I am happy in my own skin and don't care what other "little people who don't know the real meaning of life" think.  Most people who have not travelled the bc journey as so scared of the prospect that they do "run" from us.  Don't worry about these people - let them go and you will find that so many more wonderful positive people will come into your life.  Good wishes for you - take care of number ONE - YOU. XLeonie