Forum Discussion
Trikki2
8 years agoMember
Fec-d regime
Hi there
I'm starting chemotherapywith fec-d (5-fluorouracil–epirubicin–cyclophosphamide followed by docetaxel) on 25th June. I'm going to try the cold cap as well. What are your experiences with these treatments..feeling nervous.
Xx Trikki2
I'm starting chemotherapywith fec-d (5-fluorouracil–epirubicin–cyclophosphamide followed by docetaxel) on 25th June. I'm going to try the cold cap as well. What are your experiences with these treatments..feeling nervous.
Xx Trikki2
36 Replies
- melclarityMember@PatsyN it really was a very hard year and whilst I did my 1st diagnosis alone, I was grateful to have my partner through the 2nd and chemo eventhough we were only months together really. We were a double as he donated a kidney to his eldest daughter and so I tried to look after him post surgery haha!!! ummm he looked after me as I was so much worse believe it or not uuugh!
- PatsyNMember@melclarity I can't imagine that VCE year with chemo to boot. It's the hardest exam they will ever have to do at a time when they are emotionally at their most vulnerable. I found it extremely difficult but my singleness always seemed to help most situations rather than hinder them. During chemo is when I would have liked a partner...
- melclarityMemberThey sure are and they are pivotal in the process, so you have a wonderful network and are more ahead of things than your realise. Once you are on your way things will become more clear. Exactly one day at a time...one step at a time. xx We fear the unknown but the reality is always less remember that. x
- Trikki2MemberThe chemo nurses I met to book in were lovely and I have a supportive family. As you all are as well. Oh Poetry beautiful. One day at a time xxx
Trikki2 - melclarityMemberI think have a few different things you are into and that way depending on how you are feeling as to what you can manage comfortably. The worst part is having no control, so once I let go of that there were parts that were just so much easier. Once you get through the first you will feel so much better in terms of what to expect. I went alone to my first and the Nurse said I was like a duck treading water frantically awwww...was very anxious but gee they're fantastic! and I met some wonderful patients too.
I loved to write poetry hadnt done it in years, but interesting once I finished chemo what I was starting to write it was very healing for me. Through treatment I couldnt manage anything so thats where each day it was just what made me feel safe and nurtured however small.
The unknown is always so daunting, so have faith and just know you have a wonderful team and lots of support hopefully at home and here too. :) x - Trikki2MemberThanks Melinda
It is hard to just let it all happen without knowing but that's how it's going to be. Yes looking into hobbies. Not sure what I will do. It's Netflix at the moment.
Hugs xxxx - melclarityMemberYes it is interesting, the chemo that has the highest risk of permanent hair loss is the docetaxel, there are threads on the forum about it. I had FEC and Paclitaxel(taxol).
I think we naturally try to be ahead of it all and in control, but what I learnt in all my years of this is to let go of how I think it should be and let it be what it will be. That was tough. I worked in a special needs School and my Oncologist said no need to have time off at all, that the reality is you have more chance of catching something at the supermarket...I never got sick from the kids strangely, I was just so ill with treatment. Taking the time for myself was the best thing I couldve done even if it was only 3 months off work I couldnt afford anymore. It financially ruined me as at the time I was raising 2 teenagers alone with 1 in VCE.
Most key thing to do is..put YOU above everything and everyone, I love that you are already doing that by not working and allowing yourself time and space to just BE. To think about a hobby or something else that you want to do. Nurturing you through this is the most important thing you will do. Hugs Melinda xo - kmakmMemberGood on you :)
- Trikki2Member" you got this " is my mantra
Xxx - kmakmMemberVery true @Trikki2. An idle mind allows far too much room for fears and sadness to grow. Keeping busy can be really hard during chemo. You are wise to be giving this thought so early. You've got this! K xox