Forum Discussion

  • My oncologist prescibed 4mg of Dex rather than 8. She warned me that I'd see references to the 8 dose and not to worry. She said she had found the 4 it to be just as effective. I had some low to medium level nausea on this dose but Pramin knocked it on the head easily enough.
  • You are very welcome.
    ...I sorted through some of this info for my dose dense AC 4/Taxol 4.

    Exercise before and immediately after the infusion helps - it increases white blood cell count.
    Hence the study. Even if it is 20-30 minutes of walking or walking up a few flights of stairs.
    I have to say the AC hit me hard, dropped my HB to 8 so it was more like a crawl upstairs but by golly as long as kept breathing I could crawl. 

    Other things to consider:

    - fasting 

    https://m.youtube.com/watch?v=v4ame4E1rtE

    I am not sugesting you try and fast 48 hours prior and 24 hours after ( if you attempt this you need medical supervision for side effects of ketosis) but - going plant based only, no sugar, lots of fluids for that peri-infusion time should not be too hard and stopping meals at 5-6 pm night before and skipping breakfast will give you a good 18 hour fast. 

    One small detail - I could never figure out why they served hot tea/soup at the infusion centre - you want a low sugar icy poles/iced drink - icing your mouth like cold caps should mean less mouth ulcers (no study, I just thought it was logical...)

    Finally a word on Dexamethasone - given as a drug for nausea (for home ask for ondansetron ) and given in higher doses to protect from a reaction to Taxol ( Paclitaxel). It is a steroid - it has some immunosuppressive effects. 

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4839331/

    There are others... so as much as possible all I read suggest staying on the lower dose of dexa or avoiding if possible. Worth asking your onc about it. 

  • Fabulous! Ive just watched the whole program , more digging in the  garden for me in round 2 of chemo! 
    Thankyou @Wildplaces
  • @Wildplaces. Fantastic - I’m trying to exercise as normal or as close to normal as I can and my boss has been trying to find this article with me to no avail!!