Down and depressed
Hello I started on tamoxifen for a few months and then was put on Letrozole after I had my ovaries removed. After 3 months I was taken off Letrozole due to severe side affects of joint and muscle pain...
Forum Discussion
Hi @Dreaming2019 I had a rough time on Tamoxifen too due to already having joint issues thanks to Rheumatoid Arthritis. I had an oophrectomy and am about to start Exemestane and see how I go on that. If it exacerbates the joint pain, I'll stop taking it and try something else, or just stop all together.
I'm all for doing everything I can to prevent a recurrence but, if it severely impacts my quality of life now, I'll definitely be choosing quality over quantity. If you haven't already, have a chat to your oncologist about how much benefit it will really have and that might help you make a decision. My onc suggested it would add about 2-3% benefit to recurrence prevention so I rest easier knowing that if I have to stop in order to be a functional human being, it isn't a huge risk I'm taking.
I'm all for doing everything I can to prevent a recurrence but, if it severely impacts my quality of life now, I'll definitely be choosing quality over quantity. If you haven't already, have a chat to your oncologist about how much benefit it will really have and that might help you make a decision. My onc suggested it would add about 2-3% benefit to recurrence prevention so I rest easier knowing that if I have to stop in order to be a functional human being, it isn't a huge risk I'm taking.