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Ranveig's avatar
Ranveig
Member
12 years ago

don't know what to do

hello again,

my surgery for removal of my right breast is scheduled for 27.11.13. I am in two minds as to whether to have both off or just settle for having only the affected breast removed. I am not even sure about reconstruction. any thoughts?

9 Replies

  • Wow that is some family history, lucky for you you have advances in medicine and diagnostics on your side. And I did not know that about dense breasts and losing weight. Makes sense i guess.

    With breast reconstruction its important to see it as a long term goal. Yes there is lots of scaring for some women but we are all different and some ladies have very minimal scaring. It depends on what procedures are performed and which might depend on the stage the women is at in her treatment/surgery. Personally i have increased scars on my breasts due to two previousl lumpectomies then the decision to incorporate those scars into the mastectomy scar. I have found i am healing really well an in no time the scars will fade.

    The same is for the levels of discomfort. Every procedure has its challanges and each person has individual recovery times and discomfort. It does look and sound quite scary though.

    I hope there will be more ladies sharing their stories with photos on the breast reconstruction blog especially those who have been complete, so we can get a good idea of what it might be like further down the track and a bit more of a balanced view.

    Good luck with your plans XXXLouie

  • Chris,

    Like you, my breast tissue is dense - very little or no fat tissue - which, when I found out, explained that whenever I lost weight, the boobs stayed the same. I will now be asking about the monitoring of the remaining breast. What I have also remembered is that although I had a paternal aunt who had breast cancer twice, she did live till she was 86, there is a lot of cancer in my family, maternal grandmother died from bowel cancer at only 24, another paternal aunt had lung cancer but lived till she was 83, father died of some weird blood cancer, mother as a result of melanoma. so it is all around me, even my paternal grandparents had cancer of some sort - not sure what now and those who would know are no longr with us - so I do worry.  a friend who had a double mastectomy earlier this year has urged me to have both done as I am not small breasted and she feels i would be so out of balance. i dread the thought of reconstruction as from the pics there's lots of scarring, not to mention the discomfort. In my case, i would probably also end up having a breast reduction of the remaining breast.  I really don't know what to do, i have 3 weeks to make the decision surgery is on 27/11/13 but I just don't know what to do.

    Thank you for taking the time to respond nd for your thoughts

    regards

    Ranveig

     

     

     

  • Hi ranveig Like all the ladies here I struggled with this decision too. In the end I followed my surgeons advice do one breast as in theory the other was fine. I did have concerns though as my breast tissue is extremely dense and hard to monitor. I raised this but was reassured this would be fine. I then struggled with LD or implant choice but went with the LD. I was worried about it being a bigger operation etc but my doctor felt he could get the most natural symmetry with autologous tissue. A few days before my operation i was still in such turmoil that I returned to my dr to go through it all again. 3 days post op and I was so happy with my choice, the resemblance to my unaffected is really good and I felt sure I'd made the right choice. Then my pathology came back and there was so much more DCIS than they ever expected in the tissue removed during mastectomy. As a result I've been asked to return for 3 random biopsies on right " unaffected" breast because on mamo, u/s and MRI both breasts appear similar except for some initial calcification in the originally affected breast. So my advice is.if you decide to remove one breast only and you have very dense breasts you want a pretty good explanation of what's going to be involved in monitoring. Dense breasts are more difficult to screen. Good luck and I hope I haven't confused you further as I know how tough this choice is. Chris
  • I elected to have a double mastectomy, as it turned out there was early neoplasm in the unaffected breast despite negative MRI,ultrasound and mammogram.  Obviously for me double mastectomy was the right decision, however, having now been through the double mastectomy I would encourage anyone facing the decision to consider, initially,  just doing what's necessary on the affected side.  As has been said you can alway decide to have the other breast off when you are considering your reconstruction options.  We're so fortunate to have this site to have frank discussions about options.  Who else would understand.

    All the best

  • Hi Ranveig, My breast surgeon was very against it and I only had the affected breast removed before chemo & radiation. I'm booked in for reconstruction next month & it does cross my mind that I still have time to change my mind and have the other removed then but don't think I will. If you're not having immediate reconstruction perhaps you don't need to decide straight away. It's hard to get your head around these decisions when everything moves so fast when first diagnosed. Barbara xxx
  • Hi Ranveig, My breast surgeon was very against it and I only had the affected breast removed before chemo & radiation. I'm booked in for reconstruction next month & it does cross my mind that I still have time to change my mind and have the other removed then but don't think I will. If you're not having immediate reconstruction perhaps you don't need to decide straight away. It's hard to get your head around these decisions when everything moves so fast when first diagnosed. Barbara xxx
  • I feel like im in the minority here on this site but unless there was compelling medical reasons for double mascetomy i find myself wondering about this and i hear women still worry about cancer reoccuring somewhere else; plus the surgical times and times off recovering and re doing etc; i know a small group of women it makes great sense and good psychological sense to remove both but i like that i have only a small scar and only radiation therapy-- my life is intact, i can work, mainly function and have time when i have more well being back.  i might be missing something but if i had cancer in one leg and there was no medical reason to indicate that cancer would spread to the other --why would i have that one removed too?  not looking forward to hormonal treatment --in part because of what i hear on this website though--but will cross that bridge when it comes and hope for the best!  

  • As Louie says its a very personal choice to make and very hard. I spent a long time trying to come to my decision but in the end it was 'piece of mind' for me too to have both breasts removed. I couldn't stand the thought of going through this all over again. The medical profession are of the opinion that having a prophylactic mastectomy isn't necessary though they are supporting women who want it for the most part. My surgeon was reluctant at first but respected my decision. He made sure I knew what I was in for both physically and psychologically and I think that is really important. You may want to see a psychologist to talk things through. I found it helpful. I wish you all the best for your surgery and I hope you don't have too hard a time in your decision. Love and hugs Janey xxx
  • Hi Ranveig, This is a very difficult and personal decision. I know for me having both breasts removed was piece of mind and was the most I could do to prevent local recurrance. Avoiding radiation was also important for me because I wanted reconstruction and sometimes radiation can affect your choices. Funnily enough I contributed to a story about this very thing. This is the link, it was published just yesterday. http://www.health.ninemsn.com.au/healthnews/8748718/women-getting-healthy-breasts-removed-for-peace-of-mind Good luck, Xxx Louie