Forum Discussion

pennyy's avatar
pennyy
Member
13 years ago

do I have it or did I have it???

I don't deny that I was diagnosed with breast cancer, nor do I deny that I have had surgery, chemotherapy and radiation therapy for breast cancer - but do I say I still have breast cancer, or do I say that I HAD breast cancer??

After my surgery, my wonderful breast care nurse, Irene, would correct me when I said I have breast cancer.  She told me that I had breast cancer, it was gone now.  I wondered why I needed chemo & radiation, but I knew she was trying to get my head in the right space.  I knew there was every chance something was floating around in me somewhere, looking for a place to metastasize - chemo & radiation would prevent that from happening. (I hope).

It's been two months since I finished radiation - getting ready for the reconstruction now, but over the past few weeks, I find myself wondering, do I tell people I have breast cancer, or do I say that I had breast cancer????

I'm at a point in my life when I am about to be introduced to a whole new lot of friends (I hope).  My older son started school at a place where we didn't know any other families and my younger son started kindergarten, again, at a place where we didn't know anyone.  As I meet the mums and dads (now without the wigs, but mostly with beanies because of the freezing Melbourne weather atm!!), when is it acceptable to let them know, or do I have to let them know at all???  I never wanted cancer to define me and I think I've remained normal enough over the past 9 months.  I don't want to be known as the mum with cancer, I just want to be known as the mum.

I was hard enough telling my family and friends and they are people that care about me - do these new people care?  Are they running away from my kids now because my children's mother had breast cancer??

What do you say???

6 Replies


  • Whatever feels right for you but I say that I HAD breast cancer.  I am a positive thinking person and even though I have had it twice (once at 35 and then again at 42) I still put it in my past.  I don't want it in my future and by saying that I had breast cancer it feels more like i have control.

  • Breast cancer survivor? You say whatever feels right for you babe. xx Dan
  • Breast cancer survivor? You say whatever feels right for you babe. xx Dan
  • i would say I HAD Breast Cancer... but still going thru treatment. I call surgery (recon) still a treatment plan. im from melb too... do u have a support group in melb? We have a really nice, friendly, upbeat one for young women (diagnosed under 50) we try to meet up somewhere different approx once a month... let me know if you interested... 

    good luck with meeting all the new people in your life!

    Merylee

  • Hi, I agree with the other comments. It is up to you; if you feel comfortable etc.

    I "had " BC, it will aways be part of me. I just say " touch wood " all is ok.  As your new life continues, hopefully the BC experience will fade a bit into the background. I was 42 with two children..10 and 14..at diagnosis. I am now 56..my children are 24 and 28, one is married and just pregnent. Even those with Advanced BC can have decades of life, and new treatments are being trialled all the time, so fingers crossed.

     I have found it took me some years to be able to put the BC experience to one side, and not think about it at least a few times a day.

     I have found new friends and try and take each day..as it unfolds.  There are many  who have survived a BC experience, even in our small town. Some have not.  Everyone's diagnosis, treatment and situation is different; though we share some experiences and also emotions.

    It is normal to have a period of relflection after treatment and from time to time I still do.

    All the best.

  • Hi Penny my thoughts are exactly yours.I still stumble and say i have breast cancer though im assured i dont.Had my 12 month mammogram ultrasound and blood tests and there is no sign of any cancer left.However i think once having the big C its hard to adjust to the fact that its gone.Our minds are fickle and there is always that doubt in the back of it.The surgery with clear margins, mastectomey, chemo ,herceptin,radiation, and now just had my ovaries removed.Are apparently enough to stop the spread of future progression.The Aromison is the final blocking stage of any cancer cells being able to form.Omg what a list!!!what a battle our mind and body has been through.

    Im from a small country town and hate being looked at as the woman with breast cancer.We are seriously considering moving where noone knows about all i have gone through.I have an 11 year old and it will be good to make a fresh start new place new school new job.I dont think people need to know straight away the journey we have been on.People come and go in our lives for a reason and i think if we feel comfortable enough the right time will come if we feel the need to share with others about our journey.Im looking forward to meeting new people now im not bald and bloated from chemo.

    Goodluck with your new life i hope it all works out well for you xx