Dcis

Yep! Me too @melclarity couldn't agree more!!

I have to agree with @nikkid I would've preferred mastectomy and no treatment. Hindsight is a wonderful thing.  M x 

Hi @Summerhill38 - I'm so lucky I was recommended this site as soon as I was diagnosed- don't know what I would do without all the wonderful advice/stories- sorry to hear you have regrets - can't believe your surgeon didn't mention he did reconstruction- can't imagine why.....? My decision to have both off was most definitely because I didn't want the stress of wondering when/if it will return- my surgeon was absolutely fantastic and offered me every option- and I'm so happy with my outcome (apart from the horrid expanders) but knowing that horrible feeling is temporary helps me cope. No reason you cant have your miss leftie off and have both reconstructed - your body- your choice! Thank you for chatting x

Hello Caseypinto
Welcome to this wonderful site but I am sorry you had to become a member.  Keep on the site when you have a query or are just feeling 'down' as there is always some lady on line and ready to support you.
Me ?  I had extensive high grade DCIS in 2014 - in an urgent whirlwind I was told the right breast had to come off and nodes out with no chance of nipple or skin sparing surgery.  No offer of any reconstruction - but I later found out the surgeon does not do reconstruction.
My big regret is not knowing I could have both off at the same time as I am always worried despite him saying there are no reasons to suggest Miss Leftie may be affected later on.  Having to either wear a fakie or have odd-shaped tops being 'flat' (? Hmm - read that as being the ugliest bumpy sight) on one side is a real nuisance.  I'd rather be totally flat and not have the hassles.
My issues were caused by an anti-depressant I'd been on for 8 months - the things they don't tell you and what local doctors really do not know, eh ?
You know yourself, your feelings and your body so get all the information you can and your decision will be right for you.
Good luck and do keep posting.  Thinking of you.
Summer  :-)

One great thing sometimes about a mastectomy @Caseypinto - along with clear nodes, mine meant no chemo or rads. Every cloud has a silver lining x

Yes @socoda feeling extremely lucky  :) :)

@Caseypinto, how fantastic that your so happy with your decision. Brilliant that your surgery has taken care of those precancerous cells. Big happy hug for you. Xx  

Just wanted to do a quick update - finally requested my path reports yesterday and I'm feeling even better about making the very difficult decision to have the double M - my diagnosis was high grade DCIS, with comedo necrosis, non invasive, hormone receptor negative-  however the final path report after bi-lat M was that atypical ductal hyperplasia was found 10mm from my initial incision site.... which as you all probably know- means they are pre cancerous cells... who knows if they would have turned or not next week, next year or in 5 years time -  but thank God I did not give them the chance to.  As some of you wise ladies told me .... 'you know your body... do what you feel is right' @Brenda5 @nikkid @socoda and some of your 'hindsight' @melclarity and all your stories that helped me make my decision @Jenv and so many others - I thank you from the bottom of my heart  <3 for helping me to come to my decision. I know I made the right choice xx  o:)

I'm so sorry you've have to endure such a nightmare Jenv, you sound so strong - hope you are coping well with the chemo effects and that you have wonderful support. This is what gets us through. So strange that an injection to strengthen bones can cause what it's trying to prevent. Modern medicine.... Thank you for answering my post, you've really helped. Good luck with your next 4 xxx

Caseypinto...no, not back in right breast, just metastisised in spine with a couple of small mets on liver...was put on a hormone tablet for two years until that stopped working and then i started  having breathing issues which oncologist described as having cloudy, fluffy lung so hence now having chemo...so 2 down and 4 to go..i also have a monthly injection of Xgeva to strengthen the bones which can cause osteoporosis so then you have to take a calcium supplement like caltrate.