Could really use some reassurance right now ...... worried about possible liver mets
I could really use some reassurance right now. I've been unwell for a couple of weeks. It started off with nausea that persisted for a while then moved on to pain after I ate or drank anything, then I started to lose weight (not a big surprise because I wasn't eating) then diarrhoea, then swollen abdomen. A week ago I ended up in hospital to get rehydrated because I wasn't able to drink any fluids and then I had a blood test done. A few blips in my results i.e. raised inflammation levels and some other stuff etc but was sent home. They didn't seem too concerned.
By Thursday this week I was getting worse especially the size of my abdomen. It looks huge!!! Seriously it looks like I am 24 months pregnant. My boys were joking about it a couple of nights ago as I was waddling around the house. So yesterday I saw my GP who immediately sent me for an urgent ultrasound and more blood tests.
Got phone call from my GP a little while ago. Gallbladder and pancreas fine. However my liver is very enlarged and my blood test results were abnormal with everything for the liver raised including bilirubin (although I am not jaundiced), enzymes and other three letter acronyms that she just kept reading out. The levels had increased significantly since last week's blood test. Her words were "something is wrong" and "it's clear that something is going on". She told me to go to emergency over the weekend if I get worse and that I should see her on Monday.
I was just floored by this. I think it was because the last time she rang me at work she told me I had invasive breast cancer which kicked off this whole journey. I just can't help it - my mind now automatically goes to liver mets. I don't drink alcohol and I haven't changed my medications recently so I am not sure of a reason why my liver would be behaving that way and my GP didn't reassure me with any other type of explanation such as "you could have picked up a bug somewhere" or something which I think she would have if it wasn't anything to worry about. My rational brain tells me that although I am HER2+ Grade 3 (Ki67 - 71%) I was only stage 1A, my sentinel nodes were clear, I've had chemo and radiation and it's only been 7 months since diagnosis. Surely it is highly unlikely that the cancer has spread to my liver?????
I would love to hear from others on Herceptin who may have experienced this. I would also like to hear from anyone who has liver mets.
The phone call has taken me right back to the beginning of my journey as now it's the waiting, waiting, waiting again....
It's like 2 steps forward 1 step back. Now I feel lost and have to get through the weekend.
