Forum Discussion
Ellamary98
3 years agoMember
That’s nice of you to say, @eddiek. I’ve been generally very well until this year, but the Caelyx is actually helping to get me active again, despite the fatigue. My mets are in my spine, rib and a couple of small ones in my liver, which we are trying to get rid of before they settle in! Unfortunately the oral chemo options haven’t worked for me - side effects required too much dosage adjustment, so I don’t have any option but to move onto IV drugs. I’m still working, but have reduced my hours a bit. Life is pretty much as it has always been, just with a few naps thrown in, and some support where I need it ( like housecleaning!). After my surgeries, though, I remember the fatigue felt endless, especially brain fatigue. My nutritionist has been an enormous help in managing side effects from the chemo this time around, so that is one allied health service I would highly recommend. Massage may also be a good support. I have also joined a small support group for women with Stage 4 BC, and this has helped me emotionally, with a safe space to talk and listen. Good luck with it all, and be extra kind to yourself. You can do this!