Chemo induced perpheral neuropathy

@iserbrown. tx for your message. Mine is spasmodic now too so like I am guessing it is improving. best wishes

@Lmc1310 HI!  Just come across your post from awhile ago with regard to neuropathy!  Hope you are on the better side of it!  I still have a right foot that gives me curry, spasmodically so I guess that is a sign it is improving, ever so slowly!  Take care

Thanks to you all for responding- I am certainly encouraged by your responses. Xo

I've had cipn as well but no sensation like that just my hands have been an issue sivnce finishing taxol in October last year but I've noticed the last couple weeks it has improved slightly. It's fine through the day. I've been doing some research and have read ketamine ointment is effective with CIPN so will ask my oncol when I see him in a couple weeks. Has anyone tried it by the way ?? Margie

Oh yes...I had that symptom after chemo too. I'd forgotten about that. I constantly carried a tissue to make sure I had no spit on my face . I never really thought about it not really beibg there at all! It has resolved completely now. Can't say when exactly but most of my symptons had dramatically improved by 7 weeks after finishing. Kath x

@Lmc1310 I had alot of facial twitching and sensations on chemo, Im wondering if it may be nerves, the other strange thing I had happen when I finished was...walking into a supermarket across a carpark on a windy day, I kept brushing my face as it felt like I had something come across it. Turned out to be the downing growing back  on my face LOL so weird it settled down after that. xx M

Absolutely, my taste capacity came back very fast after I finished Taxol. Helped me lose weight while having treatment, so wasn't so bad! 

Thank you Afraser. I will talk to nurses when i have herceptin on Thursday. I hope your taste buds have returned.

That must be really irritating. But sorry, can't shed any light. I had and still have peripheral neuropathy in hands and feet (feet were particularly bad) but no mouth issues other than loss of taste buds. Which is a known side effect of Taxol but not, as far as I am aware, linked to peripheral neuropathy. Question for others or for oncology nurses (I found them to be very helpful about the wide range of side effects that can occur). Best wishes, I hope the problem clears up soon.