Forum Discussion
Cannabis therapy : have you tried it? how do you access it? how effective is the treatment for you?
I would like to get an idea of how widespread cannabis therapy use is amongst people living with breast cancer. If there is enough interest, might we consider joining the broader discussion about medical cannabis access and legality.
It’s all well and good that legislation has been passed regarding access to medical cannabis but the reality is, few are able to access the scheme. My Oncologist and GP are both supportive of my cannabis use but told me it is difficult to access unless all other treatment options have been exhausted.
I started using medical cannabis about four months ago. I was motivated to explore the treatment after talking with another cancer patient who was having outstanding relief from cannabis oil. I hit doc Google hard for a number of months, reading and researching all I could about medical grade cannabis. I learned about the different strains of cannabis, about CBD, THC & CBN and the many different cannabis and hemp products now available I also learned that there are people selling ‘medical cannabis’ that has no active ingredients. So, a reliable supplier is very important.
I eventually discussed my thoughts about trying medical cannabis with my oncologist. He was supportive of my using it for pain management and asked where I planned to get it. The place I mentioned has been in the business for a long time and has a good reputation for supplying quality products. A lot of cancer patients in the region go there.
I take cbd paste for pain management and cannabis oil in the hope that it will kill off the Mets in my bones (oncologist not as optimistic as me re the oil). I have had outstanding results in terms of pain management. I was taking Palexia SR150 mg twice a day and Panadol osteo three times a day. For those unfamiliar with Palexia, it is a strong opioid used for managing pain - it effectively numbs pain and your brain. I now only take cannabis extract to manage my pain and I feel so much better. My bloods are normal and the disease is stable; I have Mets in my bones but all my organs are now clear :)
FYI - I am also taking Femara 2.5mg and Kisqali My health skyrocketed soon after starting this treatment. It seems the ulternative and conventional meds are working like a dream together.
I look forward to reading your stories. If it might be useful I will write a summary of our experiences
It’s all well and good that legislation has been passed regarding access to medical cannabis but the reality is, few are able to access the scheme. My Oncologist and GP are both supportive of my cannabis use but told me it is difficult to access unless all other treatment options have been exhausted.
I started using medical cannabis about four months ago. I was motivated to explore the treatment after talking with another cancer patient who was having outstanding relief from cannabis oil. I hit doc Google hard for a number of months, reading and researching all I could about medical grade cannabis. I learned about the different strains of cannabis, about CBD, THC & CBN and the many different cannabis and hemp products now available I also learned that there are people selling ‘medical cannabis’ that has no active ingredients. So, a reliable supplier is very important.
I eventually discussed my thoughts about trying medical cannabis with my oncologist. He was supportive of my using it for pain management and asked where I planned to get it. The place I mentioned has been in the business for a long time and has a good reputation for supplying quality products. A lot of cancer patients in the region go there.
I take cbd paste for pain management and cannabis oil in the hope that it will kill off the Mets in my bones (oncologist not as optimistic as me re the oil). I have had outstanding results in terms of pain management. I was taking Palexia SR150 mg twice a day and Panadol osteo three times a day. For those unfamiliar with Palexia, it is a strong opioid used for managing pain - it effectively numbs pain and your brain. I now only take cannabis extract to manage my pain and I feel so much better. My bloods are normal and the disease is stable; I have Mets in my bones but all my organs are now clear :)
FYI - I am also taking Femara 2.5mg and Kisqali My health skyrocketed soon after starting this treatment. It seems the ulternative and conventional meds are working like a dream together.
I look forward to reading your stories. If it might be useful I will write a summary of our experiences
43 Replies
- Good that you are 'nearly there' ..... Absolutely - how good would that be, if Mets were even slowed down, let alone halted!
Hopefully not THIS price, @jena This one was posted on Facebook the other day! :( - @arpie & @Romla thank you for the links. I heard both the nurse & doctor mentioned in the article speak at a Medical Cannabis seminar in Nimbin earlier this year. Many of the attendees were older folk & people with all sorts of ailments hoping to find help. I know many older folk who use Cannabis for pain management and/or to help with sleep. But I do live in the northern rivers region and cannabis seems to be the go to medicine (or recreation) for a lot of people around here.
Wouldn’t it be fabulous if a side effect of the cbd I’m taking for pain management eradicated the metastatic disease in my bones. That is a side effect I welcome with open arms! I shall be following this line of research with keen interest.
I will finally receive my legal medical cannabis this week. My appointment with the https://www.cannvaclinics.com/ doctor was on 28 January, so it has taken a long time. I think their system failed somewhere along the line because when I recently chased up my prescription, the person I spoke with assumed I was after my second script.
The medical cannabis script may actually be cheaper than the black market oil I have been using to date. Reports from other patients indicated that the legal oil would be a lot more expensive. I’ll post a cost comparison once I actually get it. - It does sound amazing. When I was taking it though, my blood pressure went up so I stopped taking it. Maybe I should try another brand
- Another good one, thanks @Romla
- Saw this today thought might be of interest for those with peripheral neuropathy
https://www.abc.net.au/news/2019-03-09/medicinal-cannabis-and-ageing/10824750 - That sounds amazing, Brenda ..... good find.
This needs to be shouted from the rooftop ..... - Hi @Brenda5. I’m also doing well on Letrozole in combination with Kisqali. May we continue to feel and get better by the day!
- I took Tamoxifen for 2 years but in November last year I changed to Letrozole. It is quite a bit better for me than the Tamoxifen was.
- Hi @Milly21. No, I don’t take tamoxifen. I’m taking Femara (Letrozole) and Kisqali. My health has improved out of site since I’ve been taking these & using CBD and medicinal cannabis. I’ve no idea which is doing the heavy lifting but I’m thrilled to be feeling so well. No where near normal yet but so much better than I was in July last year.
CBD oil doesn’t contain estogen.
I’m not sure about plant estrogen, other than soy. I love soy, but because it contains estrogen I’ve stopped eating tofu & tempeh and using soy milk. :'(. Sad as I love soy. I have a little occasionally as I’m sure a little will not hurt.
