Burnt out DCIS
Hello! I was diagnosed with high grade DCIS in my left breast in 2024 and opted for a mastectomy on that side. Pathology later showed it had started to become invasive (just barely, but still). My s...
Forum Discussion
Hi JLumb​
I didn't have "burnt out" DCIS so can't help you there, sorry.
But I did have widespread calcifications in both breasts and diagnosis of Lobular Neoplasia (LCIS) following core biopsies on both sides. I was advised that the standard treatment for LCIS was surveillance, so was booked to have a mammogram every 12 months instead of 24 months.
One year and 10 months later I had a lump in my left breast and was diagnosed with triple positive invasive ductal carcinoma (stage 2 with a 23mm tumour). So it is possible I also had undetected DCIS (in very dense breasts).
Not to scare you, but I have now completed chemo & targeted therapy, had a skin-sparing bilateral mastectomy and am now on anti-hormone therapy. I did not have to have radiotherapy, as my lymph nodes were clear and I didn't have a lumpectomy.
If I had my time again, I would want to have had the bilateral mastectomy after the LCIS diagnosis! As it is, because of bilateral calcifications and the aggressive nature of triple positive cancer, I was happy to have the mastectomy for peace of mind and to reduce the risk of having to have further treatment if something formed in the other breast.
Just my thoughts on my circumstance. All the best with your decision xx