CurlyCurly
4 years agoMember
Breathlessness
Hi Ladies
I've been diagnosed with breast cancer in March 2020, had lumpectomy in April 2000, 4 months of Chemo (taxotere and cyclophosphamide) April - July, bilateral mastectomy in August, switching of expanders for the implants surgery in November 2020 and finally bilateral fat grafting surgery in April 2021. Before the diagnosis i was super fit, I used to exercise 1.5 hours 7 days per week. I don't expect to be able to exercise with the same intensity as before (as obviously my level of fitness has dropped significantly), but it looks like I am unable to exercise at all, though it is been more then 1 year since chemo. I've started exercising gently in January (only been walking before that)..some light weights, very light jogs...but towards the end would start feeling lack of breathing..so bad that i find it impossible to have conversation for a few after that (cough and gasping for breath)..it then propagates into the pain under my eyelids and I go to bed with heavy breathing and then wake up at 5am with horrible headache located at the upper front of my face. I have to take panadol/panadeine in order to be able to go though the day. Breathlessness then lasts for a few days and even 15 min walk makes it worse and 5am headaches almost became part of life. It takes about 5 days of complete inactivity (only walk in the house) for the symptoms to go away. I then try exercise again and even half an hour of very light weights cause breathlessness again (i don't feel any tiredness during the exercise, I am not pushing it at all, breathless come about 5 mins after i finish). I've seen cardiologist and done all the tests including the treadmill run, they said my heart is fine, i've seen respiratory specialist, she have done a few test and said i have no asthma...She gave me Sembicroft puffer, it doesn't help at all...I've done my second Pfizer 3 weeks ago and things gone worse..i am now constantly breathless...even after 8 hours sleep, can't talk due to cough and suffocation. Any talking makes symptoms worse...Recent blood test indicated I have minor inflammation...but it is so minor that GP said there is no treatment. My oxygen saturation is ok, my blood pressure is ok...I am now working with naturopath hoping she can help me to get rid of toxins (obviously 13 hours under anesthetics and 4 months of strong chemo have taken its tall) , she's given me magnesium and CQ10, but I have not noticed any improvement so far. I really don't know where to look for help...I feel like I am beating my head against the wall...doctors have done al the test and all is good, but i can only sit, sleep or walk 15 min...anything more makes me breathless and causes headaches that last for days... I was wondering if anyone here have gone through similar thing and have they been able to recover..? not being able to lead active lifestyle...this is no life for me...
I've made an appointment to se CancerFit in Greenwich...they are my last hope
I've been diagnosed with breast cancer in March 2020, had lumpectomy in April 2000, 4 months of Chemo (taxotere and cyclophosphamide) April - July, bilateral mastectomy in August, switching of expanders for the implants surgery in November 2020 and finally bilateral fat grafting surgery in April 2021. Before the diagnosis i was super fit, I used to exercise 1.5 hours 7 days per week. I don't expect to be able to exercise with the same intensity as before (as obviously my level of fitness has dropped significantly), but it looks like I am unable to exercise at all, though it is been more then 1 year since chemo. I've started exercising gently in January (only been walking before that)..some light weights, very light jogs...but towards the end would start feeling lack of breathing..so bad that i find it impossible to have conversation for a few after that (cough and gasping for breath)..it then propagates into the pain under my eyelids and I go to bed with heavy breathing and then wake up at 5am with horrible headache located at the upper front of my face. I have to take panadol/panadeine in order to be able to go though the day. Breathlessness then lasts for a few days and even 15 min walk makes it worse and 5am headaches almost became part of life. It takes about 5 days of complete inactivity (only walk in the house) for the symptoms to go away. I then try exercise again and even half an hour of very light weights cause breathlessness again (i don't feel any tiredness during the exercise, I am not pushing it at all, breathless come about 5 mins after i finish). I've seen cardiologist and done all the tests including the treadmill run, they said my heart is fine, i've seen respiratory specialist, she have done a few test and said i have no asthma...She gave me Sembicroft puffer, it doesn't help at all...I've done my second Pfizer 3 weeks ago and things gone worse..i am now constantly breathless...even after 8 hours sleep, can't talk due to cough and suffocation. Any talking makes symptoms worse...Recent blood test indicated I have minor inflammation...but it is so minor that GP said there is no treatment. My oxygen saturation is ok, my blood pressure is ok...I am now working with naturopath hoping she can help me to get rid of toxins (obviously 13 hours under anesthetics and 4 months of strong chemo have taken its tall) , she's given me magnesium and CQ10, but I have not noticed any improvement so far. I really don't know where to look for help...I feel like I am beating my head against the wall...doctors have done al the test and all is good, but i can only sit, sleep or walk 15 min...anything more makes me breathless and causes headaches that last for days... I was wondering if anyone here have gone through similar thing and have they been able to recover..? not being able to lead active lifestyle...this is no life for me...
I've made an appointment to se CancerFit in Greenwich...they are my last hope