Breast MRI
Hi everyone for those who don’t know my story.. stage 2B lobular carcinoma, one micro deposit in one lymph node Dx Feb ‘19. Currently D9 post mastectomy and axillary clearance. Wondering who was ...
Forum Discussion
Hi @youngdogmum. I have no expertise but my personal experience of breast cancer has reinforced my inclination to trust my gut.
Speed is probably not an issue, so waiting a week to discuss it with your oncologist is fine. Lay out all your concerns, hear what the onc says, take some time to think about it and push hard for action if you decide it's what you want and you meet resistance. Some doctors are happy to provide 'peace of mind' scans while others are not.
My BS is very intuitive and with my family history (mother had it at my aged, my sister died from it 17 mos earlier) and some clever questions, a prophylactic BMX was on the cards from my diagnosis appointment. After chemo I ended up doing it. It took a lot of thought, discussion and questions. I influenced by my re-excision discovering 4cm of DCIS that was invisible on the mammograms and ultrasounds. My breasts were quite dense, something about which I was never formally informed. The mastectomy pathology revealed more unseen DCIS. At that stage my risk for another BC was 27%.
Subsequently genetic testing revealed I had a genetic mutation that had me at a 66% chance of having another one. As you can imagine, I am very pleased that I trusted my gut and had the BMX (and DIEP recon).
We all have to live with our decisions, whether they deliver good outcomes or not. It's about what you think you will be comfortable with, should things go well or all turn to shit. Know yourself and trust your gut. K xox
Speed is probably not an issue, so waiting a week to discuss it with your oncologist is fine. Lay out all your concerns, hear what the onc says, take some time to think about it and push hard for action if you decide it's what you want and you meet resistance. Some doctors are happy to provide 'peace of mind' scans while others are not.
My BS is very intuitive and with my family history (mother had it at my aged, my sister died from it 17 mos earlier) and some clever questions, a prophylactic BMX was on the cards from my diagnosis appointment. After chemo I ended up doing it. It took a lot of thought, discussion and questions. I influenced by my re-excision discovering 4cm of DCIS that was invisible on the mammograms and ultrasounds. My breasts were quite dense, something about which I was never formally informed. The mastectomy pathology revealed more unseen DCIS. At that stage my risk for another BC was 27%.
Subsequently genetic testing revealed I had a genetic mutation that had me at a 66% chance of having another one. As you can imagine, I am very pleased that I trusted my gut and had the BMX (and DIEP recon).
We all have to live with our decisions, whether they deliver good outcomes or not. It's about what you think you will be comfortable with, should things go well or all turn to shit. Know yourself and trust your gut. K xox