Forum Discussion
Romla
8 years agoMember
Breast Density Workshop Adelaide papers online
https://www.informd.org.au/workshop.html
Hi all
Here are some of the papers from the workshop - some are not available eg Jennifer Stone on WA as research project as yet unpublished.The one’s I found most interesteing were the introduction by Wendy Ingman , the Legal prospective by BernadetteRichards and a Radiologist view by Mary Rickard.
Hopefully more will be uploaded soon as will a report from me once my twins 18th birthday festivities end.
Hi all
Here are some of the papers from the workshop - some are not available eg Jennifer Stone on WA as research project as yet unpublished.The one’s I found most interesteing were the introduction by Wendy Ingman , the Legal prospective by BernadetteRichards and a Radiologist view by Mary Rickard.
Hopefully more will be uploaded soon as will a report from me once my twins 18th birthday festivities end.
58 Replies
- arpieMemberRe Jean's pain @Mikey - have you been able to enquire about the use of medicinal Cannabis Oil to hopefully help control it? It IS apparently available, but needs lots of hoops jumped thru before you are allowed to use it :(
Check out this post - there is a great Documentary on it's use in Australia - that helped it being grown commercially for medicinal use
https://onlinenetwork.bcna.org.au/discussion/19569/medicinal-cannabis-oil-reduction-of-pain-improvement-in-well-being#latest
Hoping she can get it under control asap - MikeyMemberThanks kmakm and Romia - you are right. Confirmed that the price is $50 for the forum members.
- RomlaMember@Mikey I think I read BCNA intervened on the consumer price so the answer looks like yes.
- kmakmMemberYes @Mikey, it is. They have advised us of this option.
- MikeyMemberRe cost of Melbourne workshop - the INFORMD website says $300 (after Sept 10) for clinicians etc, and $50 for members of a recognised consumer group. Would the BCNA be a recognised consumer group? Would forum members be recognised as members of BCNA? I will ask the question and post again when I have the answer.
- MikeyMemberThanks for your words of encouragement kmakm. I notice that on my post on this thread our email address got zapped (probably BCNA administrator policy). However, it is on the back of our paper on the Informd website. Jean thanks members for their concern. She is going fine except for the bone and joint pain probably caused by the Femara. She is exploring pain management options.
- kmakmMemberOoh that does, thank you @Romla.
- RomlaMember@kmakm just noticed consumers now $50. In case it helps.
- arpieMemberWonderful to see you here, @Mikey and well done on taking the stance you have for you & Jean.
Like you & Jean, I was also peeved at not being advised about my dense breast tissue! If my GP hadn't picked it up (she had VERY sensitive fingertips!) my tumours would have been growing bigger every day for who knows how long, as the 'accepted methods have proved useless.
Keep up the good work!! I hope Jean is going OK xx - RomlaMemberSee who is running it in Melbourne and talk to them - maybe they can be enlightened and see the benefit of having consumers present as they did in Adelaide.BCNA might be willing to back that move too @Giovanna_BCNA