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richelle_91's avatar
12 years ago

BRAC1

I am 23 years old and I have been tested and postive for the BRAC1 Gene. My journey has been an interesting one and for being so young to be honest its hard because no one understands. I acutally dont think I have even come to terms with it because is it something we tend to think of at 23? but regardless its even harder because I havent had any children yet. I have always seen a specialist for all my pamps etc. Cancer has always been around me ever since I was born I guess, when people talk about to me they get concerned cause I have no problems being open about it, that is because My mum comes from a family of 9. 5 girls and 4 men. All but on have the BRAC1 gene for cancer. 2 auntys have died recenetly and all us younger generation has been tested all postive and one is terminal at 28. My grand mother died in early 30's of ovarian cancer. All the women in our family dont live past 50. It horrible to even type about it. I guess i say I havent come to terms with it but deep down inside i knew this was coming, I am just glad and i thank god every day for giving me the chance to avoid getting cancer because in my family thats how we all die. My mum has just been through all the surgerys and she had many many complications but she is fine. It was so scary. I have been to see all the specialist's had a MRI and just continual appts for here out.My specialist has suggested to have the surgerys around 26. So me and my parnter have decided to start trying for a family.I guess I am on here just to talk and be able to tell my story to people that understand. I just dont know how to react about it or really to think about it. Goes through my head so much.

2 Replies

  • Thank you everyone. It helps knowing you have people out there in the same situation if not in a worse one than me! Xx
  • I was diagnosed at 26 married 6 months, then was tested and found I had the BRAC1. While on AC chemo I had zoladex injections once a month and as soon as my chemo finished my periods returned. I was worried more about the fertility than the cancer at the time. I now have two beautiful children...and unfortunately just diagnosed again with bc the other breast ( 12 years later)I thought it would come back but not so soon. Am 39 now, kids are 9 and 5. I am now 5 days into my 1st TC treatment. After my son was born I removed my ovaries and never thought back, can live with the mild hot flushes in comparison to the fear. Once chemo is over I will have a dble mastetcomy as it was too difficult for me to do it earlier..I will miss them...one day at a time. Good luck with your decisions, somehow it all falls into place... Also worrying wont help in conceiving took me 4 years for my second...relax and enjoy your relationship. Kisses and hugs