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Anonymous's avatar
Anonymous
Not applicable
14 years ago

Biopsy due...Wed 26th Oct

Well today I met with the cardiothoracic surgeon to discuss the biopsy. He had examined my scans and assured me that a biopsy could be done! I was so relieved because I had been told that a biopsy would probably not be possible! It will give me peace of mind knowing that a correct diagnosis will be made based on the biopsy, and then appropriate  treatment to follow. He explained that some of the lymph nodes in between the middle of my lungs are slightly enlarged. He told me that the biopsy on Wednesday will be to test these lymph nodes and it is a relatively simple procedure that requires one night in hospital. The sample lymph node tissue will be tested for BC, HER2 status and hormone receptor status. My understanding is that if there is a positive result for BC in the lymph nodes(which he says is highly likely... 90%), I will begin treatment for BC as soon as possible. If on the other hand there is a negative result, I will need to have an actual lung biopsy. This is a more major operation and will involve a tiny part of the lung being removed and the tiny spots tested. It will require 3-4 nights in hospital. He told me that its very important that we get a 100% correct diagnosis, and he had a sense of urgency about getting to the bottom of this as soon as possible. I was so pleased that he is going to look into this thoroughly and quickly. I left feeling that I was in good hands.

I am expecting a BC diagnosis...but am wondering if in fact a different BC cancer can come back....could it be HER2 negative this time? A lower grade? Hormone receptor negative? Or does this mean exactly the same BC cancer as I had previously? Hmmm....the mind boggles. Well wish me luck ladies xxxx

19 Replies

  • Anonymous's avatar
    Anonymous
    Not applicable

    Thank you Jo. Yes I feel very confident in this surgeon. He actually sat and talked "to" me not "at" me, and appeared genuinely concerned for my overall well-being. He treated me like a person, not a number which was lovely. He took his time and spoke in layman's terms, and encouraged me to ask questions. He was very confident in being able to do both procedures and was adamant that the biopsy be done as soon as possible. He said "Whenever cancer is involved I move very quickly on things. You've waited long enough Celeste and I know the waiting must be very stressful for you, so let's get this out the way as quickly as we can! I want to make sure we have a 100% correct diagnosis so that you can get the best possible treatment to help with your recovery". Well I shook his hand and I left feeling like I was his most important patient in the world.....that's gotta be a good sign!!! 

    Emotionally I think I am turning a corner. With the help and support of all the lovely ladies on this site, my psychologist and good friends and family I feel myself getting stronger everyday. I know there will be a tough road ahead but I am feeling more ready for the challenge everyday!

    My daughter turned 13 in May this year. She has struggled at times emotionally which is to be expected. She doesn't see her father and has no brothers and sisters (or cousins on my side of the family) so I am her world....she worries about me and what will happen to her if I dont make it through. We have a very open, honest and close relationship, so she is able to talk to me about all her fears and so far I've been able to address them successfully. Its so hard watching her 'suffer' for me...

    Thanks for your best wishes Jo.

    Hugs Celeste xx

  • Definitely sending good wishes, Celeste. It's great that you have confidence in your team.

    ~Di

  • Sounds like you have a good plan Celeste.  Wishing you the best for the biopsy.  It will be perfect to get a definitive answer.

  • Hi Celeste,

    What a journey you have had, but in that journey you have become STRONG.

    Just rereading your earlier posts demonstrates this. You are now talking of quite detailed investigations as if you are an old hand!

    Great that your surgeon is working with you and for you and spent the time to explain things, certainly builds confidence.

    Regarding your question regarding your cancer changing type, my cancer did change its status after my latest biopsy. I started as E+ P+ and HER2-, now I am E- P- and HER2-. Thought this meant I was Triple Negative, but not so, you stay with the initial diagnosis but collect the term "hormone refractory" which means that targeted homone therapies no longer work for me. My options are now other IV chemothapies or oral chemotherapies such as Xeloda. I'm on this at the moment and it is working for me.

    With love,

    Joy

  • Hi Celeste,

    What a journey you have had, but in that journey you have become STRONG.

    Just rereading your earlier posts demonstrates this. You are now talking of quite detailed investigations as if you are an old hand!

    Great that your surgeon is working with you and for you and spent the time to explain things, certainly builds confidence.

    Regarding your question regarding your cancer changing type, my cancer did change its status after my latest biopsy. I started as E+ P+ and HER2-, now I am E- P- and HER2-. Thought this meant I was Triple Negative, but not so, you stay with the initial diagnosis but collect the term "hormone refractory" which means that targeted homone therapies no longer work for me. My options are now other IV chemothapies or oral chemotherapies such as Xeloda. I'm on this at the moment and it is working for me.

    With love,

    Joy

  • Good Luck Celeste,

    Your doctor does sound very good that is wonderful to have.  Thinking of you for Wednesday.

    Julia

  • hi celeste,

     thinking of you next wednesday, having the biopsy on nodes in lung area, and  stay in hospital.

    i hope you have some " supports " to help you and your daughter through all this. i wonder if your daughter is young or teenager?

    do you have family/ friends living not too far away?

    they can help with practical things while you have procedures; i am sure you already know this. grab all the help you can.

    sincerely,

    kathy.

     

     

  • Im so glad  you are feeling comfortable with this surgeon,  and by  the sounds of things you are in the best hands, he sounds as though he is really on the ball, which is really in your favor and is fantastic.

    It is really mind blowing that all this is due to breast cancer.   It is really quit scary what this horrible disease is capable of, and how fast it moves. I am just so glad you have found it all early, and what a good advantage that will be starting  this next journey. I really feel  for you and hope everything works out fine.

    How are you doing emotionally Celeste and how is your daughter doing. It would be so hard to comprehend and accept but  at least they are right on top of this now. Good luck with test next week. Keep being strong  and positive because you are going to beat this.

    Cheers Joxx

  • Im so glad  you are feeling comfortable with this surgeon,  and by  the sounds of things you are in the best hands, he sounds as though he is really on the ball, which is really in your favor and is fantastic.

    It is really mind blowing that all this is due to breast cancer.   It is really quit scary what this horrible disease is capable of, and how fast it moves. I am just so glad you have found it all early, and what a good advantage that will be starting  this next journey. I really feel  for you and hope everything works out fine.

    How are you doing emotionally Celeste and how is your daughter doing. It would be so hard to comprehend and accept but  at least they are right on top of this now. Good luck with test next week. Keep being strong  and positive because you are going to beat this.

    Cheers Joxx