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JodieWall's avatar
JodieWall
Member
12 years ago

Bad news. Please help :(

well...I had my lumpectomy last Friday with 3 nodes taken.

I just got home from getting results and my tumour is a lobular kind which was 6cm and 2 out of the 3 tested positive :(

I now feel like my death warrent has been signed.

Im having a mastectomy with axillary clearance in 2 days.

Im scared out of my wits.

Have any of you ladies been though this tough time and came out the other side?

I feel like my end is now nearing :(

They have also said im ER and PR positive. Her2 negative. Is that a good sign?

Ill also be having 18 weeks of Chemo ( every 3 weeks) and radiation plus hormone treatment which Im assuming is Tamoxifen?

Please give me some hope because Im falling in a heap :(

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  • peggysue's avatar
    peggysue
    Member
    12 years ago

    Hi Jodie,

    Sorry to hear your news, the lovely ladies on here all understand your fear, as do I. Once you start treatment, you will feel better.  My story is:

    Nov 2012, diagnosed with BC.  I had two tumors in the same breast. I elected to have a mastectomy, 3 lymph nodes affected. ER & PR positive , and HER equivocal.

    The surgery was not as bad as I thought it would be, and I recovered quickly, even managed to go back to work after about 10 days. 6 rounds of chemo FEC-D.  Again,not as bad as I imagined. I was not ever sick, had fatigue, and hair loss, but I soon got used to that as well.  I even managed to go back to work after about 7-10 days after each infusion. 25 rounds of radiation, again manageable, and now on Arimidex for the next 5 years. The last year has flown by and I am now looking forward to the future. Just try to take one day at a time,      Linda.xx

  • JodieWall's avatar
    JodieWall
    Member
    12 years ago

    Thank you. I just dont know how you all do it.

    were you like me and cant seem to find your feet or am I just a massive sook ( i think and know I am)?

     

  • Deanne's avatar
    Deanne
    Member
    12 years ago
    Have you seen Sally on Dancing With the Stars at the moment? She had multiple rumors and one was quite large. Her cancer was also triple negative so no hormone therapy. She was diagnosed while pregnant with her daughter, 2 years ago. She had to be induced so that they could start Chemo to try and shrink the tumors before operating. She endured 8 months of Chemo, then had a double mastectomy. She has had reconstruction and her last surgery was in Feb this year. She is a wonderful inspiration as she challenges herself to competing on the very public stage of Dancing with the Stars. She looks beautiful and is reclaiming her life in a very determined effort. If you need proof that you can get through this then she may be it! Deanne xx
  • JodieWall's avatar
    JodieWall
    Member
    12 years ago

    Thanks for the reasurance. I may only have 1 drain? Thats what my surgeons said today. I may be able to come home the next day but i guess we will wait and see. 

    were any of you ladies tumours massive like mine?

  • JodieWall's avatar
    JodieWall
    Member
    12 years ago

    Thanks for the reasurance. I may only have 1 drain? Thats what my surgeons said today. I may be able to come home the next day but i guess we will wait and see. 

    were any of you ladies tumours massive like mine?

  • Robyn_W's avatar
    Robyn_W
    Member
    12 years ago

    Try not to worry too much about the mastectomy.I was so scared.it was the first time I had ever been in a hospital in my life.One of the ladies on here said to me"it is very doable and not as painful as you think" and do u know what,she was right.I only needed a strong painkiller the day after my operation,and I came home on Panadol after 3 days.I never really had much pain,the worst thing was sleeping on my back until my stitches came out.I got my drains out in hospital,and even though I know a lot of ladies come home with them in,maybe you won't,and even if you do,I'm sure you will be fine.They don't hurt.PLease don't worry too much Jodie.I am sure in a couple of weeks you will be on here reassuring someone else who is afraid!!!!xox

  • Robyn_W's avatar
    Robyn_W
    Member
    12 years ago

    Try not to worry too much about the mastectomy.I was so scared.it was the first time I had ever been in a hospital in my life.One of the ladies on here said to me"it is very doable and not as painful as you think" and do u know what,she was right.I only needed a strong painkiller the day after my operation,and I came home on Panadol after 3 days.I never really had much pain,the worst thing was sleeping on my back until my stitches came out.I got my drains out in hospital,and even though I know a lot of ladies come home with them in,maybe you won't,and even if you do,I'm sure you will be fine.They don't hurt.PLease don't worry too much Jodie.I am sure in a couple of weeks you will be on here reassuring someone else who is afraid!!!!xox

  • Robyn_W's avatar
    Robyn_W
    Member
    12 years ago
    Hello Jodie,I just wanted to let you know that mine was ER and PR positive and HER2 negative,and this is a much better diagnosis.As Deanne said,it is treated with hormone tablets very effectively after what other treatment you will have.I had a mastectomy,and have just started my chemo.I try to concentrate on things I need to do for myself like look after my diet and I exercise by walking every day.Just take one day at a time,and try to see it as a bump in the road of life!I was petrified when I was first diagnosed,and I turned to this network for support,even though I have a wonderful family too.The ladies on here are awesome,and have helped me so much.Take care.Robyn xxx
  • Deanne's avatar
    Deanne
    Member
    12 years ago
    This is not a death warrant. Your cancer is still very treatable. I have a had a mastectomy and 5 out of 8 nodes were positive for cancer with me. The fact that your cancer was ER and PR positive is the best news you could have as this means hormone therapy (just one tablet a day) is very effective in preventing a cancer recurrence. Your doctors are the best people to listen to regarding your treatment and they will recommend the most effective treatment for you. I have just finished 18 weeks of Chemo and it is very doable and not as bad as I expected. It is 4 weeks since my last Chemo and I feel almost normal ( except for lack of hair! ). I have had 6 radiotherapy treatments, 19 to go. I am finding this part of treatment a breeze compared to chemo and the staff are absolutely wonderful. I will start hormone therapy after radiotherapy is complete in 4 weeks time. Then it is on with the rest of my life. With a healthly diet and regular exercise I have a very good chance of never having a problem cancer wise again. This can be you too! There is every reason to believe that you will be well again with the treatment that is available to us. I got through by concentrating on each stage one step at a time. Try to just concentrate on getting through the surgery for now. Organise what you need to take to hospital etc. Keep busy and everything happens faster than you think. I cannot believe how quickly my treatment has happened. This is just a detour in life. One we could all do without but you do get through it and life can be wonderful even along the way. I have been overwhelmed with the love and help I have been offered during my treatment. Look for the positives they are there! Wishing you strength to get through and lots of help from your family and friends. Deanne xxxxoooo