Hi cath62-
there’s been changes since that post . Later that year I had back pain and after comparison of old and new scans ‘MRIs the radiologist decided to,amend my diagnosis - L3 secondary ca and it had been there from day 1 ( so technically de novo). Whilst I was taken aback, Onc nurse did help,me process it all and as she said they’d thrown everything at me thinking it was early BC ( sometimes with stage 4 and de novo cases they don’t want to offer surgery ). So it wasn’t detrimental to my health as such although I had time where I thought I may be lucky and escaped it all.
So I’m oligometastatic - only one secondary , it’s been radiated and has been inactive since. Nothing else has cropped up , everything crossed .
my current treatment regime from Oct 22 I think now herceptin and perjeta (im now up to 54 treatments, every three weeks now )plus hormone blocker aromasin which I find ok , no major side effects
add- I’m triple positive BC
my only health issue now is a dodgy parathyroid - totally unrelated to BC
hi claudia13 - I only had a few TDMI infusions back then and then moved on . Can’t recall any side effects to be honest
Am having trouble recalling why it was stopped, but hunk we went with herceptin instead
