Forum Discussion
kabash
6 years agoMember
I had Perjeta along with Herceptin and Taxol for four doses. This neoadjuvant therapy seemed to work pretty well on my cancer after AC did nothing much. It is only on the PBS for stage 4 as far as I know but I got it through a compassionate program where the drug company and the hospital split the bill. I think this is because my cancer is HER2+ inflammatory breast cancer which has a particularly bad prognosis and is very aggressive. So to boost my survival chances they applied for this. I’m not sure if it is also indicated for node positive non-IBC HER2+ early breast cancer. I have just had my mastectomy so I still don’t know if I had a complete response but I was responding well early on so hopefully it has helped in the fight. I know that the drug that I would want to get if there is residual disease is Kadcyla. Again it’s not on the PBS for early breast cancer but if I need it I am going to hope they will do the same compassionate application thing or otherwise I will just somehow pay for it. Perjeta gave me bad diarrhoea exactly two weeks after each dose for a few days. Also would get it as it was administered from second dose on. My husband said the name is highly accurate because it has purge in it and would call it silly names like purgeatron in an attempt to find humour in the situation.