Forum Discussion

Nathalie_Green's avatar
12 years ago

Any input is good input

Well, where do I begin;

I lost my mother to breast cancer when I was 18, she was just 40.  I too am 40 now and have always felt that I have a lurking black cloud of “cancer” that hovers above me.   I miss her terribly and after much time contemplating whether or not I was to meet the same fate I started researching and doing regular tests.

I suffered from Endometriosis at a young age which eventually lead to the removal of my Uterus at 36 after having 2 children. 

It was suggested that I see a Genetics Counsellor due to my strong family history of Breast and Ovarian Cancer.

 I have always had my regular Breast checks as suggested by my Doctor once a year for the past 6 years.  I have endured biopsies from my breasts which returned back benign on all which is always a relief.  I was soon made aware that it was in my best interest to have checkups twice a year which meant I was having an MRI, Ultrasound and Mammogram.  This is a very exhausting procedure that leaves me on edge awaiting results every time. 

At 39 due to the concern of my Ovaries and strong family history Doctors thought it best to have them removed as I had already had my uterus removed.  I was told it was important as Ovarian Cancer is very hard to detect even with the CA125 test. 

I am now on HRT tablets and believe that it was the right decision for me no matter what.  However,  my ovary showed up positive for Cancer but it was a stage 0.  All things aside, the concern has always been for my breasts and because I have no living relative to test against it is not accurate as to whether or not I carry the same gene as my Mother.  Because Ovarian and Breast Cancer are linked, having my breasts removed has always been an option.

I was a little taken by all this information but I have done so much research, seen many doctors and now believe that having a mastectomy may just help me to have a better fulfilling future.

Unlike others, I have not been diagnosed with Breast Cancer and in my eyes I am thinking that this is my chance of taking control and beating “IT”. 

This was never an option my Mother ever had the chance to take.   Yes, It is a big decision and not one to be taken lightly but the more time that goes by the more I feel that it is the right thing to do.

I have never joined any site before but after reading so many people’s posts I thought I could maybe get some feed back and see if there is anyone else that is thinking or doing the same thing.

 

Thanks heaps xx

6 Replies

  • Thanks so much Susie,

    I will definately check them out..... as for having your ovaries removed don't worry, I am only 40 and have had a hystorectomy and my ovaries are gone too, but I am on HRT tablets and don't feel any different.  

    Don't let it worry you, be assured that you will be fine.

    x nat

  • Thanks so much Susie,

    I will definately check them out..... as for having your ovaries removed don't worry, I am only 40 and have had a hystorectomy and my ovaries are gone too, but I am on HRT tablets and don't feel any different.  

    Don't let it worry you, be assured that you will be fine.

    x nat

  • Hi Nathalie

    it's a lot to contend with, all these decisions. I just thought that I would direct you to some other areas of the website. There is a great Reconstruction Group on BCNA that has a lot of women who have gone through the same decision making process as you.

    Also the "pink hope" website and facebook group has women of all ages that are high risk for BC and Ovarian Cancer and these questions are posed regularly. I think they would be a great help to  you to see how others are processing these decisions.

    I have just had preventative double mastectomies before Christmas as I found a BC in August, had that removed and then found out that I had the BRCA2 gene. It was an easy decision for me. I will be having my ovaries out in next few month (not so easy for me as I don't want to menopause yet!).

    Best of luck with your decisions. S

  • If you are told by your Genetics Clinic and doctor that the BRACA test is not really needed because your only living relative has passed, is it right to say that there is no guarantee that you won't carry the same gene as your mother, which is what I have been told many a time???

    feeling a little confused?

    x Nat

  • Thank you Donna, 

    I have been seeing the Genetics clinic for some time now and when I at first wanted to get the BRACA1 and 2 Gene test they had all said to me that it it was up to me but was not beneficial in my case as my mother was not alive to compare it to to see if I had the same gene as her.  

    Is this something I should persue?

    Nat

  • WOW, what a lot to contend with.

    I would suggest that genetic testing for the BRACA1 and BRACA2 gene would be a starting point, your doctor needs to refer you to the familial clinic and if accepted they arrange councelling etc along with the testing.

    I believe that any decisions we make need to be informed decisions and as such testing is the way to go. Be careful what you read online whilst there is great information out there  there is also alot of misinformation.

    Take care

    Donna