Forum Discussion

Sophollie's avatar
Sophollie
Member
10 years ago

And here I am

2 weeks ago, having breast cancer was the furthermost thing from my mind.  I knew that i had some changes to my right breast but I had no reason to believe it was anything other than Fibrocystic disease as suggested by the midwife i had spoken to previously.  When I finally saw my doctor, she immediately knew different and the next day i was a seeing a radiologist who informed me that I needed a biopsy - he suspected Cancer.  A week after that (Bloody easter!!) I got the results positive for Invasive Ductal Carcinoma. 

My name is Angela and I am 34 years old with two gorgeous kids.  A 4 yr old daughter named Sophie, and a 6 month old baby boy Oliver (SophOllie).  I have an amazing husband David.  Together, we were meant to be just starting to go about the business of living our lives out.  I had no idea that i needed to prepare myself for this.

At this stage, I am still waiting for full diagnosis and staging.  The radiologist suspected Inflammatory Breast Cancer but I'm not too sure as I dont have all the usual clinical symptoms.  I definitely have skin thickening, some peau d'orange and a dense 'mass' without any lesions but beyond that, I do not have the red inflamed look, nor has it progressed in a particularly fast manner.  I first noticed changes around 10 months ago, certainly more than the 6 months they talk about on the websites i have found. 

My best guess is Locally Advanced Breast Cancer (With possibly multi-focal points according to the pathology report).  I have an appointment on Friday with the specialist to get things started.  The waiting is awful.  I am lucky to have a great support network but really, no one knows what this is like except other people in the same boat.

8 Replies

  • Testicular cancer! lol. Oh how I can relate to that - the information overload and trying to figure out how to filter it all. I had no symptoms at all and only found the lump by accident. Chemo before surgery is usually only given (I think) if the cancer is quite large and they need to reduce it before operating. Your surgeon will soon let you know. I also just wanted them to get it out as soon as possible. I think my surgeon was expecting me to object when he said he wanted to cut it out straight away. I just said 'cut this thing out now!'. Surgery was delayed a week though as it coincided with my daughter's first week of school - and I didn't want to miss that. Surgery was very successful. Then my oncologist offered me two choices for chemo - I chose the longer, tougher one as it gave me slightly better odds of it not returning. And that's where I'm at now - I've had two rounds out of 6 chemo. So a third of the way there.

    What to expect from your meeting tomorrow? Your surgeon will either say "this is what we're doing" or he/she may present you with an option. Write down any questions you have beforehand because you will forget most of them when you're in there. Information overload I found. I took a few notes as well. Hopefully you have a kind and understanding surgeon. I really liked mine and had total faith in his decisions and I think that's important.

    Afterwards if you have any questions, jump on here and ask away.

    Just as a side note - as a mum of two young children I knew I was going to need help and support. I knew my husband was going to be carrying a huge load looking after me and the kids whilst working full time. So I made the choice to make it public knowledge. Some prefer to keep it a private matter. But for me, that was what I needed to do. The support I have received from my friends and work colleagues has been nothing short of amazing. Dinners have been cooked, children looked after, one friend has even paid for a cleaner for six months! I have been very lucky.

    Anyway, I'll stop rambling now. Best of luck tomorrow. Ask lots of questions! xo Sherril

  • Thanks Gurneys!

    I'm so sorry to meet you under these circumstances but thank you for your words. 

    My husband and i have spoken and we have agreed that when it comes to treatment options, we will throw everything at it and are prepared to go as aggressive as the docs will let us. 

    The waiting is awful and with so much information out there online, it seems to add to the anxiety.  I dont have typical symptoms of anything right now so I have looked at EVERYTHING!  At this point I'm half convinced i have testicular cancer!  I have no idea what to expect from my appointment on Friday.  My GP seems to think I will have chemo before surgery which I hate.  I just want to get this thing off me right now!!!!! 

    Thank you again for your words.  I'm not sure what the network etiquette is (I'm used to parenting forums) but I'm wishing you and all the ladies here a speedy recovery!

  • Hi, so sorry to hear you are going through this. I was diagnosed in January and it has been a whirlwind since then. I am in a similar boat with two very young children and an amazing husband. They are the reason I am fighting this hard, probably choosing a tougher chemo option than what was really needed. I want to kick this thing in the butt now and I don't want it to ever return. I found the waiting for test results awful but used the time to do my own research about it all, write down questions for the oncologist etc. You're right - when you have just started a family this is the last thing on your mind, the last thing you could imagine happening. But here I am, it's happening and I am going to fight it hard.

    Good luck with it all and remember we are all here to offer our support in any way we can. I have found this community wonderful.

  • Dear Angela,,

    Welcome to this group where you will get lots of empathy, information and virtual hugs when you are feeling low.  Here we all understand the sheer shock of the diagnosis.  I remember sitting by myself in the area outside the surgeon's room on January 27th at Breastscreen Victoria after the bad news had been broken to me, fighting back tears and saying to myself in total disbelief "I have cancer!"  

    Mine turned out to be multi-focal Invasive ductal carcinoma.  After two lumpectomies failed to get it all (as I had large breasts it turned out to be a large lurking underlying single cancer), my surgeon went for a mastectomy and reconstruction.  The lymph nodes were clear and they are as sure as they are able to be based on pathology results that I am cancer free.  Two weeks after surgery I am home, tired but recovering, and even walked twice on a flat path around a very small suburban park on the weekend.

    There were lots of little kids in the central playground with their mums and dads, and everyone was smiling.  That will be you again, but for the moment, just deal with one day at a time and accept the love and concern with which your family and friends will surround you as they come to terms with your diagnosis.  If you feel like yelling and venting at the u fairness of it all, this is also the place to come, as we have all been there!

    Georgina. ??????????

  • Hi there,

    I am so sorry you are joining us, but welcome - there will always be someone here for you when you need support.

    The waiting is terrible - we have all been there and understand.  On Friday you will start the fast track - buy a notebook for your purse and take it everywhere as you will have a lot to take in!  Once the surgeon removes the mass, you will get pathology and a game plan and things will move very quickly.  Your "My Journey" kit from this site will answer so many of your questions - be sure to order one.  And remember that treatment is now very advanced.

    Just put one foot in front of the other at this stage - one day at a time - you will get through this.  Your husband will be your rock and your children your inspiration.  We are all knocked flat with shock when we are diagnosed.  We do understand how you feel and send you a big hug.

    Four years ago I was where you are.  There is light at the end of the tunnel.  Stay strong when you can.  You will get through this. Let us know how you are going.  xxx Michelle

  • Good luck with the treatment Angela. Breast cancers not something we can put off and we just have to face it and get on with the treatment although goodness knows I would love to ignore it sometimes. At least you have 2 children to give lots of hugs to and a lovely husband David.

  • Hi SophOllie, sorry to hear about your news. The waiting is awful, I'm waiting on more results myself. I was diagnosed late January this year. You'll find this ladies on this site absolutely fantastic. They give so much support & advise. At the moment all you can do is take one day at a time & be kind to yourself. Sending you HUGE hugs. Paula XXX
  • Hi Sophollie-  so sorry to hear your news. I was diagnosed at the end of Nov last year and straight into surgery within a week. I agree - the tests start and waiting for results and information is like a cyclone of anxiety.  So much change so quickly - and you have limited or no choice.   I wish you well over the next few days as you wait it out.  Kris