@Mjheke,
I feel for you lovely. For those of us who get the full run of side effects plus a few that aren't on the list this thing interupts every aspect of your life. From you brain function to your love life to your sleep patterns. Like you, I had felt pretty good, all things considered, after active treatment ended. For the first four months of taking Tamoxifen not one part of me actually felt like me. The mood swings, the atomic hot flushes, (some of those were from chemo menopause though) the tears, the not being able to string a sentence together, insomnia etc etc and the list goes on.
I understand how you feel being in the cloudy fog of doom as I like to call it. Being alive, absolutely thankful for that, but not living. Who wants to wait a decade feeling like sad trash to see if it works anyway??? I have tried every available supplement that I thought might help, tried accupuncture for the bone pains etc and couldn't find anything that would make a difference. The one thing I think helps a bit is evening primrose/starflower and a shit load of vitamin b seems to help the brain function.
To continue or not is a personal decision based upon what you call an acceptable and enjoyable quality of life. I have played with the drug and tweaked and manipulated the situation to suit what I consider a good middle line.
Now no oncologist is going to recommend this but as mine says it's better than not taking it at all. No matter how wonderful and understanding they appear in the office It's their job to recommend what's considered the best course of action for you, but they don't live with it.
Out of the 100 weeks I so far that I have been prescribed T I have taken it for 75. I had my first break at 4 months and have continued roughly 3 months on 2 or 3 weeks off. As soon as that fog comes back and I feel like a sad shadow, I'm off it. If there is a holiday or it's christmas time or such, I go off it for so I can totally enjoy myself and feel normal. Not every side effect disappears in that short break but it does make a hell of a difference. Kind of like a reset button to go again and of course time plays a factor in there as well.
It's a good result for me. I feel I control the drug, it doesn't control me and it sure beats the heck out of jumping off a bridge. Have I made the right choice? We shall see. But I am comfortable with the fact that I would never have known anyway.
Lots of love and luck.
xoxoxoxo
