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jennyss's avatar
jennyss
Member
8 years ago

A tip to ease hand-foot syndrome side effects

Hand-foot syndrome, or Palmar Plantar Erythrodysesthesia (PPE) can be a side effect of chemotherapy, as I found out. It is not a nerve thing - it is a skin toxicity associated with some chemo chemicals, including docetaxol which was part of my treatment. Symptoms can include redness, swelling and blistering.
On my third round I copped it badly from days 7 - 17. For three days I could hardly walk. Staff at my Cancer Centre suggested I use cold mitts during by fourth and last infusion. These look like giant oven mitts, including a gel/freezy layer with velco strapped around the wrist. Very cold but I just managed it.
After a bit of internet searching (I know, I know) my husband helped me to make my own cold mitts for home use for feet and hands. Ingredients were an old towel, masking tape, and a freezer/gel pack. I used this twice a day for about 15 minutes for each hand and food. I know I can't say for sure what prevented or helped, but I was so happy that I had no PPE symptoms during my last round. 
I would be very interested to hear about other network members' experience of PPE, and your tips to help. Perhaps it is not a common side effect? Photos included for you to have a giggle. Best wishes to all from jennyss
  • Thanks @Mollygirl, That was in August and  September last year - all good now; and hope all is going well for you too. 
    Sun just coming up here and I'm going to hit the supermarket at about 8.30 before coming home and sweeping, vacuuming and mopping. The fun a girl can have!
  • You clever girl @jennyss. Good work with the DYI!! I had weird feet stuff with the docetaxel like feet felt freezing cold and then burning hot and felt swollen tho they weren't. Hope it all settles for you. Xx
  • I suffered hand  and foot syndrome while doing Taxol . My hands and feet were red and burning. I used I've packs wrapped in a tea towel to relieve symptoms. The strange thing is I finished chemo in July last year and still have flare ups . My oncologist said you can't still be getting it. All I know is it's not in my head lol.