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Beery's avatar
Beery
Member
11 years ago

A new course in the road

Yes, now we have taken a new course. Afinitor and Exemestane didn't work. Results from ct and bone scan show that Bone mets have increased further along the spine, ribs, around scapula and brain.  No soft tissue affected as yet...Phew.  Good and bad news.  Had first infusion today of Epirubicin and Cyclophosphamide along with anti emetic tablet for nausea. Also had an ECHO done along with ECG to see how my heart is and get a base line for future reference. Booked into LGFB workshop in a couple of weeks time as I will loose my hair.  Looking forward to it as it should be a good afternoon. So has anyone got any great treatments for the expected side effects to come.  Open to anything and  everything at the moment as this is actually the first time for iv chemo treatment.....Sue:-) 

 

metastases
  • Beery's avatar
    Beery
    Member
    11 years ago

    Yes Tonya, This will be the first time to loose my hair.  I had it cut short in preparation for it.  Have appointment with LGFB workshop on 18th and looking forward to it.  Hopefully get a few ideas on how to wear scarves etc.  Today is day 4 and so far all I have had is a sore throat and a very dry mouth during the night.  Yes, I'm keeping the fluids up.  Will just have to be patient and see what happens next.  Thanks for your response.  I'm about to tackle etax online.  Sue:-) 

  • TonyaM's avatar
    TonyaM
    Member
    11 years ago

    So sorry to hear about your bad news that the drugs Af and Ex didn't didn't help.I had chemo 4 years ago- Docitaxol and cyclophos. I found days 3-6 the worst and had aches,especially a bad headache.So it's a different combo to what you are having but no doubt,the cyclophos is abit ruthless.Will this be the first time you've lost your hair?Let us know if you need any help.My bc support   group have a supply of head gear we have gathered if you need any. Hope you are feeling ok and getting lots of rest and help.Big hug,Tonya xx 

  • Robyn_W's avatar
    Robyn_W
    Member
    11 years ago
    One day at a time right?I used to get a really hot red face for the first 2 or 3 days after each infusion.Dont forget to drink all that water for 3 days to flush the toxins out of your system.Take care xoxRobyn
  • Robyn_W's avatar
    Robyn_W
    Member
    11 years ago
    First time!You sound as though you have been through the mill!! I had cyclophosphamide, and like other chemos,I guess everyone's reaction is different. I think though ,that the fatigue in the first week seems to get everyone,along with changes in food preferences,maybe skin rashes and mouth ulcers. It certainly is true, that if you can get out for a walk each day, it does alleviate some of the tiredness.All the best and please stay in touch on here.xoxRobyn
  • Robyn_W's avatar
    Robyn_W
    Member
    11 years ago
    First time!You sound as though you have been through the mill!! I had cyclophosphamide, and like other chemos,I guess everyone's reaction is different. I think though ,that the fatigue in the first week seems to get everyone,along with changes in food preferences,maybe skin rashes and mouth ulcers. It certainly is true, that if you can get out for a walk each day, it does alleviate some of the tiredness.All the best and please stay in touch on here.xoxRobyn