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hb's avatar
hb
Member
15 years ago

a long wait?

Hi everyone, this is my first post. I was diagnosed on 11/1/11 (memorable date!) and will be having a mastectomy and axillary clearance on 02 March. I am still trying to absorb what's happening, but the thing that's bugging me is it seems a long time to wait for surgery. Has anyone else had a long wait between diagnosis and mastectomy?

I've started to feel unwell (headaches and sore neck, like a glandular ache) but I don't know if it's cos I'm stressing out or if it's the cancer. (I guess it could be both!)

Any advice appreciated -- I've been browsing thru archived posts and can't believe how knowledgable and helpful everyone is.

cheers,

hb

7 Replies

  • Hi hb and welcome to the site.  You seem to be finding your way around okay but if you're interested in finding out more about how the site works, the help page is a good place to start. 

    If you need a hand with anything just shout. :)

  • Hi hb,

    I've had the surgery twice.The first time I had a 2 week wait and the second time was a 3 week wait.My surgeon was flat out and had to cancel someone to get me on the 3week wait.I can understand how you must feel about your wait. It won't hurt to ring up your surgeon's receptionist  and check if there are any cancellations and let them know you'd like it done sooner.In the meantime just keep busy.Make sure you have button down the front pjs and shirts to wear afterwards.Contact a breast care nurse if your hospital has one-they are great. We are all here for each other-we know what it's like.

                                                                   Tonya

  • okay, thanks. Thanks for being so welcoming & encouraging, hope I can return it or pass it fwd some time soon.

    H

  • okay, thanks. Thanks for being so welcoming & encouraging, hope I can return it or pass it fwd some time soon.

    H

  • both these gals have got it right!...use this time to prepare ur body for surgery and all that follows..with any surgery, most of us can deal with that quite well..its all the other stuff afterwards that ur body needs to be as strong as it can be. Keep coming back and asking whatever questions u need..someone will have an answer/support for you as we all have had different drugs/treatments/surgeries and plans-everybodys cancer is differerent, but we all need the understanding of someone who truly knows how we feel physically and emotionally...happy to help as much as i can while i am feeling well- i may need ur words of encouragement and support one day..and u will be here to give it :)

    Good luck..and the 2nd March will be here b4 u know it

    Sam  :)

     

     

  • both these gals have got it right!...use this time to prepare ur body for surgery and all that follows..with any surgery, most of us can deal with that quite well..its all the other stuff afterwards that ur body needs to be as strong as it can be. Keep coming back and asking whatever questions u need..someone will have an answer/support for you as we all have had different drugs/treatments/surgeries and plans-everybodys cancer is differerent, but we all need the understanding of someone who truly knows how we feel physically and emotionally...happy to help as much as i can while i am feeling well- i may need ur words of encouragement and support one day..and u will be here to give it :)

    Good luck..and the 2nd March will be here b4 u know it

    Sam  :)

     

     

  • Hi HB

    I'm sorry you have to wait for your surgery.  I was diagnosed on 17 Nov 09 and had surgery on 8 Dec 09 - my choice though as my son was graduating from year 12 two weeks after diagnosis and I didn't want to miss anything!  My surgeon told me that the cancer most likely took years to grow and waiting 4-6 weeks wouldn't make a lot of difference. To my mind though once I was aware it was there, I just wanted it out!  Still, I also wanted to be well for my son and his celebrations.  I'm glad I did - I wasn't well enough to do anything for about 4 weeks after the surgery.  You'll have a drain in (mine stayed in for 3 weeks) and you'll be tired.  

    Think of the extra time as a chance to get things in order so you don't have any pressures while you're healing.  It also gives you a chance to try to do some light exercise or something that will make you feel better and stronger for the surgery.  I would suggest trying to strengthen your arms and shoulders as an axillary clearance really does limit movement in the affected arm until you can get some good physio exercises going to make it strong again.  

    I think the biggest challenge in waiting (at least for me anyway) was the mental stuff - all the thoughts swirling around in my head that caused me to be distracted and not sleep well.  I found keeping a journal next to my bedside was helpful.  If I woke in the middle of the night, I would jot stuff down and when I got tired again, stopped and drifted off to sleep.  Don't be afraid to ask your doctor for some assistance if sleep is eluding you - you can also buy herbal tablets to help you sleep as its important you try to rest as much as you can.