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mgndam1603's avatar
13 years ago

A change of plans

Yesterday I went to see my oncologist and what a surprise she had for me.

Strangley I took my husband with me and believe me that is unusal as I am independant and like to do things on my own but yesterday I was feeling somewhat vulnerable.

Number 1 they have found a mass on my left kidney - where did that come from, my husband and I sat there with our jaws dropped. More test to be had and then decisions to be made.

Number 2 I have been told it is now important that I have chemo -  what the heck I was told no need.

It appears that one of my results KI67 index indicated a very very high reading and this now changes everything, so I was at peace with the treatment plan and all prepared to move forward and now wham a change.

All this is not good for someone that controls all elements of her life.

Yesterday I had to take some very deep breaths and realise that even when I think I have accepted that I have no control I am still trying to control things.

So ultra sound tomorrow on my kidney to determine if its a cyst or a tumour and then plans can be made.

I am learning something here, expect the unexpected.

4 Replies

  • I am so sorry to read about your double whammy news.How unlucky can you be to get 2 primary cancers- you poor darl.Yes,it would feel surreal. Chemo is no walk in the park but you'll get through it -what choice is there. I have a work colleague who had kidney cancer -had it removed,didn't need chemo and is good as gold years later.I know everyone is different but it helps to hear good news stories.Perhaps it would be worse if it was the same cancer cos then it would mean it had spread.I've had breast cancer twice,7 years apart and in the same breast.It was caught early each time and so hopefully,I'm ok. I know you must still be in shock(,especially after the goal posts got moved on you)but it's good you are starting treatment straight away.You'll get your head around it all and come out fighting -that's what we women do.Keep blogging and let us know how you are.

                           Sending hugs, Tonya xx

  • It appears I have a tumour in my kidney, I am one of a select group of people that has 2 primary cancers at the same time.

    So they are going to deal with my breast cancer as that is aggressive and start my chemo next friday and then we will deal with the cancer in my left kidney after that!

    Talk about a double whammy. My family and I are reeling, it all seems so surreal. Here I was just a week ago doing a happy dance and now this.

    I will be honest the chemo scares me but I know it is for the best and the kidney well I just hope they don't do biopsies whilst I'm awake like they do for breast cancer.

     

  • Small steps.. and yes, expect the unexpected. That said we cannot control the diagnosis, maybe we can control the way we REACT to the diagnosis and deal with it?

    The emotions you experience over the course of treatment; the loss of control and feelings of loss, sadness, anger, fear, shock and adjusting to it all can be hard.  It may take a year or two to feel life get going again. It can be like a " death and rebirth "..etc.. It was for me, anyway. It took some years, and even today, every day I still think of it, even though it was in '98 and 2003. 

    Sorry you have received another big SHOCK. You may know what the mass is on the kidney after an ultrasound etc. So much waiting and I still remember it. Learning to lean on those who you love is ok. You will get through it.. but it looks a long road right now, and it is. Time passes, so just take it one small step at a time.  Get all the facts, ask questions, and ask for help if you need to also.

    Best of luck, Kathy.

  • Small steps.. and yes, expect the unexpected. That said we cannot control the diagnosis, maybe we can control the way we REACT to the diagnosis and deal with it?

    The emotions you experience over the course of treatment; the loss of control and feelings of loss, sadness, anger, fear, shock and adjusting to it all can be hard.  It may take a year or two to feel life get going again. It can be like a " death and rebirth "..etc.. It was for me, anyway. It took some years, and even today, every day I still think of it, even though it was in '98 and 2003. 

    Sorry you have received another big SHOCK. You may know what the mass is on the kidney after an ultrasound etc. So much waiting and I still remember it. Learning to lean on those who you love is ok. You will get through it.. but it looks a long road right now, and it is. Time passes, so just take it one small step at a time.  Get all the facts, ask questions, and ask for help if you need to also.

    Best of luck, Kathy.