Forum Discussion
Ann58
21 days agoMember
6 weeks after surgery
Hello everyone its been awhile since I was active here . I’ve had a lot happen in the past few months after my diagnosis. Lumpectomy at end of August. During the operation the nipple lost blood s...
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arpie
21 days agoMember
Oh my GOSH, Ann58 - you have been put thru the mill. I am SO sorry that all this has happened to you 😢
I'd suggest that you join both the Reconstruction Private Group, as well as the 'Flat Chat' (those who choose to go flat) so that you can have a chat with those who've done both xx
Group: Choosing breast reconstruction | BCNA Online Network
and
Group: Flat Chat - no breast reconstruction | BCNA Online Network
Have they explained WHY all this necrotic tissue is 'hanging around'? You sure woudln't want to have reconstruction and then it happens again :(
Is there any way that they could reduce the size of your good breast & use 'that tissue' to add to your surgical breast? It might be worth raising it as an option as you can't have implants.
I am sure there will be many discussions on becoming a 'monoboober' in the Flat Chat group .... Maybe even have a confidential chat with the Help Line on 1800 500 258? Just to bounce your thoughts off them?
Take care & all the best xx
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Ann58
20 days agoMember
they haven’t said why this is happening with the tissue. But I believe they made a mistake in the first op by not removing nipple then the 2nd by not stitching it up correctly. But of course, it’s their word against mine.
I’ve decided to seek a second opinion away from the current hospital that I go to. I’ve found 3 that I can go to so I’ll call tomorrow. I don’t trust the Drs that I’m seeing now.
I have a counsellor and I’m seeing her tomorrow.
The Dr today said things to me that were without studies to back it up. She hadn’t even looked at my notes. So I cannot go back to her.
I’ve made decisions that some won’t agree with but they are my choices. And I expect Drs to respect that.
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- SYLV1E19 days agoMember
Ann58 I think it’s a good idea getting a second opinion and it does sound like your current medical team have closed ranks. Perhaps look up your current and prospective surgeon to see if they work at the same hospitals. You don’t want to be wasting money and time getting an opinion from one of their mates. Their websites usually lists the public and private hospitals that they attend.
I’m so glad you have a counsellor. I hope they can provide the support you need.
As for your decisions on your treatment, it is totally up to you and only you.
Wishing you all the best. xoSign in to react to this post