Forum Discussion
Piccme
9 years agoMember
1st Chemo help
I start chemo tomorrow. I'm not coping so well today, I think I am going to scream if I hear anyone else tell me how important it is to stay positive! Today I'm having a picc line put in, chemo education and an appointment with my onc this afternoon. I also have an appointment with the hairdresser to cut my long hair short. I am feeling really overwhelmed. I have read many of the post from you ladies who have bravely gone through chemo. I guess I fear the unknown but am so concerned about the list of side effects (which I know are different for everyone). My onc says that she thinks I will do well through chemo but obviously there are no guarantees. I didn't fare so well through surgery, finding out that I don't tolerate opiate pain relief well and that many of the nausea drugs didn't help when I was on IV antibiotics for axillary infection. I think this is adding to my anxiety. Sorry, I just needed to vent as my husband and teenage daughter, although caring, just don't understand how I'm feeling today.
30 Replies
- bevvzyMemberOh great lol chemo screws up the bowels lol to explain! I am a paraplegic and my bowels are ny biggest enemy. Regular coloxyl tmes two twice daily. Movicol every night and even then when we suddenly realise its day 8 no go, drastic measures are needed. Crap i hope i dont need chemo. And u r right. Endone does suck and it doesnt work AND it blocks u up even more. Whinge whinge. Had mastectomy thursday so am temporarily allowing myself to whinge lol. Meant to just have sentinel node same time but took a "bunch" as looked suspicious. Convinced myself sentinel node would be neg but then again i convinced myself that despite knowing damn well what a cyst felt like, that i would no way have anything malignant going on! Either an optimist or blind fool lol. Invasive grade 3 idc. Still convincing myself, despite having so many taken as looked "suspicious" that will be at least lymph node neg
- ZoffielMemberDon't stress @redflower , cancer brings its own language, which we have to learn. Between 'WTF did they just say?" and bloody autocorrect, it's surprising that anyone gets anything right. Ever.
- redflowerMemberum have i said the wrong treatment.. fair chance... radiologist visit after second chemo to get that all sorted out.. work out a plan and what its called then... sorry..
- AnonymousNot applicableIt's really weird, however a boiled egg used to help with my nausea at times, whether it's the protein or what it is, but it helps. I used to have a bowl of freshly cubed melon, watermelon, cantaloupe and rockmelon in the fridge, keeps your mouth moist and it's nice and cool. Sips of water help too. Hoping that you're managing ok
Cuddles, Trace xx - melclarityMember@Piccme How are you going? I found none of the Nausea meds worked at all for me, so I muddled through with Ativan and tried to sleep as much as I could. I couldn't eat alot and drinking was a problem too, hope you sorted some things out with your Team. xx Melinda
- au0reiMember@redflower what is radium treatment? I have not heard of this before. xxx
- au0reiMember@piccme I had fluid retention with cycles 2-4 and each got worse. My legs are the ones affected. I sleep propping my legs up. Drink plenty of water even though it sounds illogical with all the fluid already in. It helps to flush and a pee marathon. I did that and early morning the retention would clear. For the last cycle the fluid retention was worse and yup affected my mastectomy site and i had to massage a lot to relieve the discomfort. xxx
- PiccmeMemberThank you everyone for your kind words and advise. As I feared the nausea has kicked in so will speak to my team today to see what I can do to remedy that. I also have quite a bit of fluid retention, I am stressed about this as it is worse in the arm that runs the risk of lymphedema. Spent the night doing arm exercises on and off. Another topic for my team today.
- socodaMemberHi @Piccme, just sending you a big hug Xx Cath
- DiMember@Piccme Hi, hope your first day of chemo well., it is very scary and you do feel anxious of the fear of the unknown. The best thing is not to listen to any stories people tell you coz we all react differently.
On my first day of chemo I was so anxious I couldn't sleep. I found that after the 4 hours of the infusion I was waiting for something terrible to happen . The anti nauseous drugs they gave me worked amazing I found it very hard to sleep as the steroid drugs I had been given kept me awake. I can't remember the exact name of the ginger stuff I had. I was fortunate enough to have my niece who is a naturopath who gave me advice and natural remedies for the nausea. I always took the ginger before my chemo . i had chemo every 3 weeks over a 6 month period and found the middle week was my toughest and third week was great then back into it.
People always told me to stay positive but I think it was because they really didn't know what to say to make me feel better and I understood that.
When you are confronted with all these things at once you are entitled to be anxious , I really did work on the power of positive thinking and always made sure I wore nice bright clothes to chemo to cheer me up. That was me and you will find whatever suits you .
My husband and I went to a Look good feel better class before I started my chemo which was very good coz we were both very frightened of what was ahead for us.
It made me think about how I was going to get through it and out of it I decided that when I was out in public I would make sure I continued to wear my makeup and wear bright clothes like always and this helped me..
mad your journey goes along you will learn to get rid of the negative people and do what is right for you
Good luck
Di xx