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JSN's avatar
JSN
Member
7 years ago

12 month ultrasound and mammogram result

Hi all

Had my first 12 month ultrasound and mammogram-all clear. 

So CV port out to come out on Friday.  My choise to leave it in until after the 1st lot of imaging done.

Still not really sure how to feel.   You walk out of the office after being told 'there is nothing on the scan/mammogram-its all clear' and I thought 'okay, now what?'  Like the final scene in Nemo.  There was no fanfare or balloons.  Or even excitement.  The surgeon was matter of a fact.  I asked if I should had a CT and she said 'no', that a 'CT is not done unless there is a suspicion that the disease has spread'.  Should I insist on one? Or should I trust that the right interventions are being recommended?

Everything about this process scares me.  Every niggle, every twinge, every pain I have now I am on alert. Does this ever go away? I have read a little bit on the 'fear of recurrence' or 'recurrence anxiety'.  Does this ever fade? Or not dominate thoughts?  Any recommendations on what is good reading?

Someone else who has been through BC said to me a few months back 'Its a life sentence' and I like to focus on the 'life' part.  A sentence to live the term of my natural life.

x
  • @SamJgS. It gets better over time it truly does. But as @arpie says trust your gut if youre ever concerned. But at the same time you have to get on with life too. At the moment love just take it a day at a time. I find getting out for a walk every morning helps heaps. You’re welcome to come with me anytime if you’re up that early!  I leave home at six and walk down to the water it’s bliss and clears my head. I’ve had the same advice about repeat scans too. So I trust my oncol with that as it’s not good to have them all the time either. Hope this helps love. Big hug. Margie xx
  • WOOHOO!   Celebrations tonight??

    Yes, it is really weird, isn't it - we are expected to go back 'to normal' when that 'normal' has gone out the door .....and in our brain, we are not as accepting as the specialists & powers that be!!

    My husband had stomach cancer in 2010 (major surgery - most of stomach removed) and chemo - and I still monitor him for any change in ANYTHING!  I usually get him to visit a really good diagnostic specialist once a year, whenever I notice anything that has changed.

    Go with your gut feel - if you notice anything that hangs around for a while (or is extremely painful & persistent) ... get checked out.  

    All the best with getting the port out and your continuing good health.  xx
  • Congratulations about the all-clear - fear, I have no idea whether that ever goes.
  • @SamJgS congratulations that’s amazing news xo. I think I will always have the possibility or recurrence in the back of my mind but I’m not going to let it rule my life.