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Kathryne's avatar
Kathryne
Member
14 years ago

10 days in Hell

Well I feel  like I have just survived 10 days off hell. as you may have read my first chemotherapy has not quite gone to plan. Everything that could go wrong did, first my portacath developed a blood clot and could not be used until they could flush it out with dye under Xray and even after that happened it became too swollen to use for bloods and now cant be touched until next chemo on the 30th. Needing Blood tests every day for 10 daYS proved difficult as my veins just could not stand up to it and my arm is black and blue from all the needles, I was even having blood taken from my fingers and thumb after the other veins in my arm gave up.

I was on IV fluids for 5 days and antibiotics IV after I developed a chest infection on day 3. Then to top off everything else I became Neutropenic and was then wrapped in cotton wool so as not to pick up anything else and I was confined to my room.

I knew chemotherapy was not going to be a walk in the park but not for one minute did I ever think I would lay in bed wishing I could go to sleep and not wake in the morning. I can say I have never ever felt so sick in all of my life , I honestly did not know what to do with myself. I could not keep any medications down and would vomit when only sipping my water. I can say though I lost 12kg in the 10 days so I guess there was some kinda payoff .

So the next session is due on the 30th September and to say I am already nervous is an understatement but the Oncologist suggested he keep me in hospital and have me on the IV fluids and antiamedics from the start and hopefully this should stop the symptoms becoming so bad, but if worst comes to worse at least I am there where he can help me by increasing the medications ASAP and the nurses can monitor me more closely.

Well tonight I am home and looking forward to spening the evening with the family, and sleeping with my husband beside me. I am going to try and look forward and trust that the next time wont be quite so bad. OOh and yes I am slowly, very slowly  starting to lose my hair, it is as if its teasing me daily by dropping bits and pieces here and there, on a funny note the Nurse was making my bed when I was in the bathroom yelling at my hair to give it up and just fall out and stop teasing me daily. I am sure she thought I had finally lost my mind .. Sigh maybe thats what is happening to me... who knows, I am just trying to keep my head above the water or should that be out of the bucket :)

7 Replies

  • Hi Kathryne,

    Sorry to hear of the awful time you had with chemo, I hope it will be better for you next week. We all have different issues and demons to deal with on this awful journey, but one thing we have in common is the fighting spirit, so keep that going as hard as it might be at times. I am not saying "stay positive" because sometimes we don't always want to hear that (Lord knows I have heard it a thousand times, and yes I do try to) but more importantly is that we may not always feel positive but we can still fight!!

    I was apprehensive about losing my hair but in all honesty when it happened it didn't worry me that much! i actually like my wig and scarves, in fact my hair is now starting to grow back and it is grey!! I am just dreading the curls as I hate curly hair on me!! Oh well, que sera sera xx

  • Hello Linda

    Thank you for your response, I needed a little pep talk today to keep me going and looking to the end of the tunnel. My hair shed over night and I woke to find a lot of it in my bed this morning I was not expecting it so soon so I have been in tears most of this morning. I keep telling myself it is only hair and will grow back once I have kicked the Big C as far away as I can. Thank you for reminding me that this will indeed pass.

    I hope you are feeling good

    Kathryne

  • Sorry to hear Kathryne, that you have had a rough time!  As awful as it has been, I am glad you have good care.

    Sadly there are side effects with treatment, and  procedures. Only until, you get to be the one you gets the short straw, do we realize how awful and dangerous these drugs are.  But the big C needs to be destroyed.

    So speaking as a nurse, I am always amazed how strong our bodies are to heal.  And speaking as a patient, I truly feel your pain; ( I, too had a portacath put in , and had blood taken out of my feet!!!!!! sooooo painful). 

    Good news is that this will pass!!

     

    Keep in touch, am keen to hear your progress

     (the hair loss is yuk.... but later curly hair to come back!!!)

     

  • It was so great sleeping in my own bed last night and I do not feel sick in the slightest, infact besides feeling a little tired and worn out when showering I almost feel normal again :)  The oncologist did tell me that if a woman suffered bad morning sickness then she will have bad sickness with FEC. Unfortunately for me I suffered morning sickness 24/7 for the whole nine months.

    The idea of staying in hospital next time is to get the medications into me IV, I guess if I cant swallow them due to nausea they may as well sit on the bench.

    Kathryne

  • Hi Kathryne,

    Whoa, what a horrid time you have had.  I hope you are now feeling a little better (especially after being able to spend some time at home with Hubby and Family Yay!  :o)  and it all goes smoothly for you, on the 30th. 

    Take care.

    Rachxx

  • Hi Kathryne

    You poor thing - that does sound like a horrific 10 days. Let's hope you are now done with infections and that the side effects next time are not as bad. It's good that you will be staying in hospital next time - just in case.

    12kg is a lot to lose!  Make sure you get some nice home cooked meals into you now so you can build up your strength for the 30th.  I know it's hard to eat when you feel so sick, I found soup and toast to be the best meal for me.

    After a stay in hospital how good is it to get home to your own bed.  I hope you only had sweet dreams last night and no nausea!

    Take Care

    Ann-Marie xx

  • Hi Kathryne

    You poor thing - that does sound like a horrific 10 days. Let's hope you are now done with infections and that the side effects next time are not as bad. It's good that you will be staying in hospital next time - just in case.

    12kg is a lot to lose!  Make sure you get some nice home cooked meals into you now so you can build up your strength for the 30th.  I know it's hard to eat when you feel so sick, I found soup and toast to be the best meal for me.

    After a stay in hospital how good is it to get home to your own bed.  I hope you only had sweet dreams last night and no nausea!

    Take Care

    Ann-Marie xx