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Sue_Jones's avatar
Sue_Jones
Member
10 years ago

1 down, 3 to go!

Good evening ladies!

i know that it has been a while since I've posted on the blog but life has been quite crazy and with Christmas fast approaching, that has not helped to ease anything.  I have done the bulk of the Xmas shopping, card writing, etc but still have a bit to go.  Luckily hubby is on holidays next week to help out.  So after my second visit to the oncologist on the 24th to organise my chemo treatment, my husband whisked me off to Singapore for 8 magical days of fun and relaxation before I started my chemo last Friday.  I was extremely nervous, worried, etc about the whole thing but the nurses were fantastic and talked and walked me through everything.  It went event free and I was pretty much fine for the weekend except that I lost my taste on Sunday which has now seriously temporarily killed my love for wine and many other foods.  I am trying different things and tips that have been given to me but I must say, it is getting me down, I seem to be quickly losing my appetite.  Yesterday the body started to ache and today its gotten worse, Panadol to the rescue.  I have not been sleeping all that brilliantly either.  I had my 2nd of 3 injections today and hubby is doing a wonderful job with jabbing, these are to help build up my immunity.  My head is feeling sensitive already, is this too soon, I was told that it would probably be a couple of weeks?  I have chosen my wig but haven't picked It up yet, next Tuesday I get it, should I be worried and change my appointment?  I am hoping tomorrow will be a much better day, supposed to be seeing Hugh Jackman as we have had these tickets booked for ages and I am really looking forward to seeing the Hunk.  It has been hard venturing into the world of the 'Unknown' but hopefully this is the worst of it and that having more knowledge will make it easier for me next round which is New Years Eve. Any tips will be greatly appreciated.  

Hugs from the West.

Sue ??

 

 

8 Replies

  • Hi Holly!  Thank you very much for the tips, yes wine is being saved now, can't kill my favourite drink.  Tried a pear cider today and that went down ok today, so am thinking that this may be the new chemo beverage.  Take care. ????

  • Thank you Kim.  I tried a pear cider today and that went down ok, so may be the new chemo treatment drink. ??

  • Thanks Sharon!

    I'm feeling heaps better today, mouth and tongue and a small rash around my neck today are the only issues.  My GP prescribed some anti fungal lozenges and said to take an antihistamine to see if that helps, so we will see.  I think I'm going to get my hair cut shorter on Monday, hubby thinks I should just get a number 4, our first disagreement since diagnosis, I got too upset about it so told him to drop it and let me deal with it my way.  I tried a pear cider today at my work do and went down ok.

    hugs from the west! ??

  • Hi Sue

    You're going through the worst days now, it will get better! My taste buds dropped off really early too. Wine tasted absolutely horrible and so did most foods. Try not to eat any of your favourite things while going through treatment, your brain will associate the altered flavour and they will never taste the same again! Wait till you're finished so you can enjoy them again later, something to look forward to!

    I ate lots of omega and high 'good fat' foods like salmon and avocado, you need less of these foods for the same nutrition value so easier to get through when your appetite wanes, plus they are excellent at helping your body repair. Eat lots of proteins like chicken and eggs too, it will help prevent your body using all your 'muscle protein' to repair instead, so you don't get too much muscle wastage. Protein smoothies are a good way to go and keep your fluids up as a bonus.

    You may find your head is sore from the injections, mine was terrible, it's not just the hair loss thing! The injections make ALL your bones ache more, including your skull and the little bones in your ears you didn't even know could hurt, not just the long bones like they tell you!

    Keep up the pain killers and go to something stronger if it gets really bad, no point trying to be stronger or braver than you need to at this point, less pain equals more rest and hence healing!

    Good luck hon xxx hugs xxx

  • Anonymous's avatar
    Anonymous
    Approved

    Hi Sue, how lovely that you're husband was so thoughtful to take you on that lovely trip away. It makes a big difference when you break up the chemo with positive experiences. Here's hoping that you have a wonderful festive season, Trace ????????

  • Hi Sue,

    chemo is just horrible! Different side effects happen with every cycle but it does end. I found smoothies and juices were the best for taste especially juice with ginger added. Stews were ok. I got my taste back 5 weeks after  last chemo, the joy of food! Now I am 8 weeks and I find champagne the best when it comes to wine and I will celebrate the end of radiation on Friday. cheers

    All the best

    Kim

  • Sounds like Singapore was just what the doctor ordered!!!   I remember my last chemos, my taste buds ran away and I always knew as carrots were the last taste left and the first one back..  It was frustrating to be eating a variety of school room clag all the time!!!..  I ended up using some juicing and smoothies to get the vit and mins in.  With you hair, it is certainly a weird feeling. I found that cutting my hair into a short style it lasted longer but eventually it was a buzz cut that took the head pain away. When you pick up your wig, it is always better to fit it with the least amount of hair as it will sit better and they can do any alterations needed and it will not change much after that.

    I wish I could take the 'what if syndrome' away and banish it for you.  Wishing you a minimal chemo interruption for Christmas and New Year.

    sending hugs, Sharon (pink66)