Forum Discussion
Siewli
4 years agoMember
Waiting game
I have been diagnosed with breast cancer last Monday. I suspect that I m in Stage 4 as my specialist thinks the lumps have been 12-18 mths. I know my body is feeling pretty bad n getting nerve pain n isomia and yet I m still waiting for lymph nodes biopsy n PET scan to be done. Then another week of delay that I can see my breast specialist for treatment plan or surgery. I m afraid my body cannot wait any longer. Is there a way to get treatment immediately? Is this a norm to wait about 2-3 weeks to get treatment plan?
36 Replies
- arpieMember@Siewli - SO sorry you are not feeling well - if you are feeling REALLY ill or in fear of passing out at ANY TIME - please call an ambulance/000.
If you are just feeling 'crook' ... please ring the number that @VSP has given you - they will talk you thru it & advise you one way or the other xx
take care.
Great that you are seeing your BS this arvo - I hope it goes well with your results. xx
Make sure you have a buddy with you (hopefully to drive you there too) for both physical and mental support xx
All the best - VSPMemberHi there Siewli,
I hope you are OK. I’ve just seen this last post. I’m not sure what you are experiencing and I’m not a health professional but I believe in NSW you have Health Direct, a 24 hour call line where you can speak to a nurse. The number is 1800 022 222. I’m in Victoria and have used the Nurse on Call line (our equivalent) here when someone has been ill to get advice about what to do next. Of course if you think it’s an emergency, then call 000.
Take care
S. - SiewliMemberShould I hang in till I see breast specialist this afternoon or go hospital emergency? I m so in dilemma.😭
- SiewliMemberNot feeling well.
- lovemoonMember@Siewli good luck with your PET scan. Yes, whenever we can do something, we’d feel better. It’s like at least we can take back some control. We never want to be in this fight, but since we are here, let’s put up a good fight! xxx Sending positive thoughts your way❤️
- SiewliMember@Mez_BCNA @Ausmum2 @lovemoon Thanks for all your lovely response and support. Tomorrow I will be seeing my breast surgeon for my PET scan and lymph node biopsy result. I'm feeling much better after the PET scan..somehow I'm more calm and with the supports and love from my friends and family and BCNA community I managed to feel positive vibes regardless of the outcome and flight it back, Thanks so much for all your kind words and responses! I can fight this!
- Mez_BCNACommunity Manager@Siewli Just thought I'd add to the already wonderful and supportive comments from other members. As you know alot happens in a hurry when you’re diagnosed with breast cancer and the Cancer Council have developed 'Your guide to best cancer care' that may help you with what questions to ask your health professionals to make sure you receive the best care at every step (Also gives you timeframes for each step):
https://www.cancer.org.au/assets/pdf/breast-cancer-english#_ga=2.172040547.1725638755.1652225004-1243466662.1632374541
Reach out to our Member Support Team if you need further support or have any questions. Take care. - Ausmum2Member@siewli I had two lumps one 70mmx49mm and one 49mmx35mm side by side in the same breast (and two sets of negative biopsies) a “fatty necrosis” on ultrasound and swollen lymph nodes - before a “that’s odd” got then putting me on an MRI and yet, here I am 12 months later (double mastectomy - histo is TNBC grade 3 cells - , 16 chemo cycles and 5 weeks radio) sitting on the other side and going back to work :)
take it gently and slowly, don’t overthink it and “offer it up”….
right now, just taking it one step at a time, whilst easier said than done, is a set of skills that will stand you in good stead…and may prove to me more than useful ahead..
I found being determined to find the joy (no matter how tiny or how simple) in everyday helps. - lovemoonMember@Siewli I can totally understand what’s happening with you. While I was diagnosed with DCIS in early April, My surgery (double mastectomy) won’t happen till next Friday. I have been experiencing all sorts of pains including in the breasts, armpit, tingling in my legs, worrying and worrying as I wait. All the waiting and waiting is so stressful… I do find that doing some cardio exercises help to release the anxiety. Doesn’t have to be high impact kind of exercise, just some low impact exercises are really helpful. Take care! xxx ❤️
- SiewliMember@Zoffiel Thanks for the tip of counting down.