VERY newly diagnosed Mucinous breast cancer

@Taji. Sorry to see u here but welcome and big hugs. I am recent diagnosed and have had 3 surgeries this year and have just started chemo and this forum has been an amazing spice ot support and advice. I got myself what I call a giant zip up pencil case and keep all my paperwork in there and take it with me to any cancer related appointment. Good luck and take care xoxoxo

@Taji there is a well laid out journal as part of My Journey kit but also keep good records until it arrives

Hi Taji. Welcome to this wonderful forum, though I'm sorry you have to be here. You've had some excellent advice so far and I don't have too much to add.

I too have a good prognosis and a lovely husband, but it doesn't stop me from having days or weeks when I feel very down. We all bring other parts of our lives to how we process and deal with treatment. It's a long road. It's important to be kind to yourself, and to be a little selfish when you need to be.

When everything seems to be overwhelming, take it one day at a time, sometimes one hour at a time. This is especially useful advice for us planner, organised types (I visited Officeworks for folders too)! There is no planning for breast cancer and the interruption to our lives can be personally challenging.

I don't know what you're like but I find accepting help to be difficult; I'm the one who helps everyone else! However from the very beginning I was advised by all my medicos to accept all and any help offered. I resolved to take that advice and it has greatly assisted me on my path, though it can still make me uncomfortable sometimes. Nothing like breast cancer for pushing you outside your comfort zone! I found it useful to flip the thinking and realise that if this was happening to one of my friends I would very much want to help.

Good luck with your treatment and let us know how you get on. K xox

Thank you @Irb_30 - as depressing as it is to see so many women (and perhaps some men too) on here with bc, it helps not to feel alone. I appreciate all of the welcomes to this group!

Thanks Finch - I didn’t realise a dairy came with the pack - that’s awesome. I feel lucky to live in the age of the Internet where I am able to connect with people who also have bc - I think I would feel very isolated and very down without all of this support and great info and advice.

Hi @Taji. Seeing the responses so far reminds me of what a fabulous group this is. I don't have much to add, other than a warm but sorry welcome. 
I'm sure @SoldierCrab will be along to add her trusty list of resources.
I would comment that whilst there is not so much focus on type, there is a lot of focus, treatment wise, on receptors, and grade or cellular division rate.
Also, theu sometimes can get enough information from the core biopsy, mammogram & ultrasound to decide the order of treatment.

Take care

@Taji , sorry you've made it here, but welcome and hugs to you. The BCNA My Journey kit contains a fabulous diary/journal which I use for all my bc related documentation, it was designed by women going through treatment for bc.
I, like you don't want this journey to get me down and am determined to be as cheerful as possible, but at times it will. This is the one of the best places to be when it happens. we're all here to help each other, ask questions, give advice, have a laugh, we all understand. Take care xxxxxx

What a brilliant idea Sister!! We have an Officeworks here, so I will pop in tomorrow on the way back from my Drs appointment and get the large version - sounds like an easy way to keep everything in one place & organised. Thank you :smiley:

@Taji I went to Officeworks (actually went there to get kids school stationery) and bought a zip-up binder and plastic sleeves.  Then a few weeks ago went back and got a lever arch zip-up binder as the first one wasn't big enough.  I've filed all of my documentation in it as it comes (and I've sectioned it into treatment, work/financial, well-being, etc).  I tend to type up my dot-point notes for doctors and also questions so that I've got a permanent record and I include these as well in the folder.  Zip-up means that I don't need to worry about things falling out and I can also pop other bits and pieces in as required, such as the headband for cold caps when I was using them, or my notebook.  When I go to an appointment, I just pick up the folder and it's all there.

Thanks Romla - I have ordered the kit and the advice about keeping notes is great ... I will start writing things down. Seems to be so much to think about, plan etc. as well as keeping track of advice. I may splurge on a rather special (i.e. disgustingly expensive) notebook as a cheer me up present to myself.