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Pampa's avatar
Pampa
Member
6 years ago

Unsure how to feel since diagnosis in October 2019

Hi all

I guess I can say my journey began in October 2000, I was pregnant with my son and on the same day my family found out my Mum had breast cancer, sadly we lost her in April 2014.  Ironically I was diagnosed with Breast Cancer on the same day she was some 19 years later.  I had my annual ultrasound but knew in my own mind going into my appointment what the outcome was, and as I watched my scan (yep shouldn't have done that but my Mum was a registered nurse and I learnt to much from her I guess) I saw this massive shape and knew.  I went to my GP the following day for the results, yep that day was a blur the words were Carcinoma, Cancer and I'm so sorry.....

To date all I know is that I have a massive lump in my left breast which has literally taken over 50% of my breast, and lucky me I have had one sneaky one get away and is in my lymph node.  2 weeks ago I am told one thing from my Dr following the MDT meeting, then last week told by another Dr following last weeks MDT meeting that my Bone Scan showed a "Bone Island" but just in case well send you for another scan this time a PET scan which was on Monday.  Anyhow this Dr informs me rudely I might add, "If it's in your bone there's not a lot we can do for you, surgery would be a waste of time so well sign you off from the Specialist Dept and wait to see what oncology do.  Needless to say I wanted to ask this Dr if he had any training on how to speak to patients as his manner is and was disgusting, but I just left my appointment feeling rather unsure and still am to be honest.

I have no idea as to what stage or grade my cancer is all I have been told is I have Ductal Carcinoma in Situ of intermediate nuclear grade.  Yep no idea what all that means.....

And I don't see the Oncology Dept until next Thursday and I guess am feeling somewhat lost.

I am a number to 3 not so young humans my daughters are 26 & 16 my son is 18 and I have a 1 year old granddaughter so life I guess is not so great at the moment.

I have an appointment tomorrow with my GP to discuss how annoyed I am with the shit ass Dr and his manner of leaving me hanging I guess is the only way I can put it.

Any advise would be helpful xx



11 Replies

  • So sorry you are in this position but now’s the time to remind everyone that you are the patient and are entitled to some civility! Your appointment with the Oncology Department should help clarify your diagnosis and possibly your recommended treatment. Your children are old enough to both understand and to offer ways to be helpful. Let them do so. There are many on this site with advanced cancer who get a great deal of benefit from treatment. And you may not of course be in that number. Day by day is the way to go at this stage - don’t assume anything, seek as much clear information as you can. If you can, take someone with you to medical discussions, two heads are better than one. Things do become clearer as your treatment plan is developed and many people on this site will
    be happy to advise and help. Best wishes.